Kristin Schwoebel
Were you misdiagnosed as another health condition first? How long did it take you to get diagnosed with narcolepsy?
SleepyRN Member
6 months
Lori.Foster Community Admin
Welcome to the community,
Tiffani Frett Contributor
Yes I was! I was given medication for depression that made me feel worse. Symptoms started at age 18 and wasn’t diagnosed until 45. My ex husband would make this crazy face at me when he made me sad or angry. It was cataplexy I couldn’t feel.
Lori.Foster Community Admin
Hi
CommunityMember279 Member
Asthma
Lori.Foster Community Admin
That must have been very frustrating,
Tory Member
I am 55 and have just been diagnosed with the help of a sleep study and my ENT. I’ve gone YEARS always feeling tired. I’ve spoken with my PCP who stated it was a vitamin deficiency or thyroid issue. Those items were addressed and the fatigue was still overbearing. I remember sleeping in school and waiting until school was over to go home and nap. I remember falling asleep in movie theaters and while watching TV but always felt it was the material I was watching that wasn’t stimulating enough. I felt different and lazy. My ENT has given me hope. Though I’m on 25 mg of adderral ER, I’m still exhausted. My ENT has recently started me on Sunosi 75 mg. and I’m having no success. The stigma of the disease is concerning and the thought of potentially being on stimulants for the rest of my life is unsettling. Has anyone else experienced these thoughts and feelings? Has anyone had success with Sunosi?
Allison Echols Community Admin
Hi