What Do You Wish People Knew About Narcolepsy?
That it is a real condition and I'm not just tired. It's a Neurological condition as well and it does exist many people suffer from it. There are more things evolved with it besides just sleep as well.
We hear you. More awareness would be so impactful. Feel free to share any of our articles if ever you feel in might help. Warm wishes. - Lori (Team Member)
It is not by itself considered a disability.
Yet 1 definition stated that narcolepsy is a disabling condition marked by excessive daytime sleepiness and cataplexy.
If that’s not a disability nothing isAs a nurse-being in a profession that works 24/7- it is really hard to find a job that will allow me to work days- per Dr's orders-as to keep me on a strict sleep schedule-when Narcolepsy is not considered a disability. Nurses are allowed to work day shifts by seniority not by health conditions. So good luck- and if you fall asleep in shift=fired!
That lack of empathy and understanding must have been so disheartening,
. I wish you had been able to continue working, but I am glad you were approved so quickly for disability. Wishing you the very best. - Lori (Team Member)
I am an LPN and I cant count the amount of times that I have fallen asleep while standing at my med cart. I will be writing and before I know it, it feels like im still writing but the ending of what im writing trails off into gibberish. Typically I have to go outside to wake myself up which the bosses dont understand and get mad at me taking an extra break or ill have to run out to my car and grab my modafinil and again, they consider that an extra break and give me a tough time.
I wish some people knew what it feels like to have it. Just for a day or two 😂.
That would sure improve the empathy factor, wouldn't it?! Wishing you the best. - Lori (Team Member)
