How long did it take to get diagnosed with narcolepsy?Reactions 0 reactions Comments40 repliesDiagnosis
AdviceHi all I've just got my results from my polysomnography and MSLT. Before this I reduced my dose and came off Pregabalin, Fluoxetine and Zolpidem. I'm currently taking no medication...Reactions 0 reactions Comments1 repliesDaytime sleepinessInsomniaSleep Study
Narcolepsy medications and heart problems I just turned 50 and have been talking Adderall for almost 30 years and while I am not thrilled to have to take amphetamines, I have been fortunate to live...Reactions 0 reactions Comments1 repliesSide EffectsTreatment
Sleep medsI have narcolepsy and have been taking zopiclone 15mg. I no longer find it effective. What are others taking?...Reactions 0 reactions Comments3 repliesTreatment
Narcolepsy & FinancesDo you feel that narcolepsy has had an impact on your finances? In what ways (employment changes, increased healthcare costs, etc.)?...Reactions 0 reactions Comments3 repliesCost
FeaturedLack of Empathy and Compassion When TiredI am unable to connect fully or be empathetic when I am tired. I feel like on the surface this makes sense. However, I do want to know if I...Reactions 0 reactions Comments4 repliesIntimacy & RelationshipsTips & AdviceFriends & Family
Trusting God for healingIm encouraging everyone thats dealing with Narcolepsy to trust in God for healing and do know that with strong faith healing is possible just as God healed people in the...Reactions 0 reactions Comments3 repliesTips & Advice
Cataplexy war scarsI'm curious to know if anyone else is keeping track of all the cataplexy/accident related scars? It might sound weird but I started a sort of "album" of pictures of...Reactions 0 reactions Comments11 repliesCataplexyCopingSymptoms
FeaturedWhat’s helpful during cataplexy attacks?Cataplexy attacks can be outwardly shocking to observe. They can also be dangerous for those of us who experience them. When I have full-body cataplexy attacks the people around me...Reactions 0 reactions Comments27 repliesCataplexyCaregivingStigma
Driving - Travel - How do you manage?How do you manage daily life regarding driving? My radius is approximately 5 miles, and that is after a nap and with medications. How do people with narcolepsy manage to...Reactions 0 reactions Comments10 repliesCopingTravel