Making a Clean Space AccessibleLiving with a chronic disease like narcolepsy is hard enough, but keeping a clean living space on top of that? It’s virtually impossible! At least for me - when I... By Tatiana Corbitt2 min readBookmark for laterReactions 0 reactions Comments0 comments
Navigating the Shadows of Narcolepsy StigmaLiving with narcolepsy is a unique and often misunderstood journey, marked by the ever-present stigma that infiltrates various aspects of our lives. Unlike many other chronic conditions, narcolepsy doesn't come... By Iris Vasconcelos2 min readBookmark for laterReactions 0 reactions Comments3 comments
Is a Career With Idiopathic Hypersomnia Possible?Throughout my life, I went through a bunch of career changes before I was even diagnosed with idiopathic hypersomnia (IH). As a kid, my dream job was to be a... By Lauryn Bhavnani3 min readBookmark for laterReactions 0 reactions Comments0 comments
I Am Held Captive by My CataplexyI’ve lost someone close to me, and I am having a hard time both physically and emotionally handling it. Experiencing grief when you have a condition such as narcolepsy feels... By Jenean3 min readBookmark for laterReactions 0 reactions Comments0 comments
Should You Live Alone With Narcolepsy?When I express how much I want to live on my own again, people always ask me, “Is it a good idea to live alone with narcolepsy?” It’s a question... By Iris Vasconcelos3 min readBookmark for laterReactions 0 reactions Comments0 comments
Community Perspectives: Narcolepsy in Love, Life, and RelationshipsIt's no secret in this community that living with narcolepsy and maintaining relationships at the same time can come with unique challenges. Many people often associate the month of February... By Narcolepsy Team2 min readBookmark for laterReactions 0 reactions Comments3 comments
Narcolepsy and My Chaotic Relationship With FoodLiving with narcolepsy means that I often struggle to take care of my basic needs. Naturally, narcolepsy has made my relationship with food difficult at times. When my narcolepsy first... By Tatiana Corbitt2 min readBookmark for laterReactions 0 reactions Comments0 comments
Navigating Love and Narcolepsy: A Guide to Dating Someone With NarcolepsyDating someone with narcolepsy can bring unique challenges, but with understanding, communication, and empathy, you can build a strong and fulfilling relationship. Here's a guide to help you navigate the... By Kerly Joy Bwoga3 min readBookmark for laterReactions 0 reactions Comments0 comments
How Narcolepsy Affects Financial IndependenceAside from the condition itself, there's an added burden tied to narcolepsy that hardly receives recognition — the struggle to be financially independent. In an ideal world, money would be... By Iris Vasconcelos3 min readBookmark for laterReactions 0 reactions Comments0 comments
Fight or Flight: A Narcoleptic's Reaction to PainNarcolepsy will rear its quirky little head at the most inconvenient times. It doesn’t care where we are or what we are doing. If you have cataplexy, like I do... By Jenean3 min readBookmark for laterReactions 0 reactions Comments0 comments
Finding the Right Narcolepsy Treatment Plan Is Like Building a HouseFinding the right narcolepsy treatment plan is like building a house. When I was first diagnosed with narcolepsy, I hoped there would be a quick fix — a pill I... By Tatiana Corbitt2 min readBookmark for laterReactions 0 reactions Comments4 comments
Narcolepsy and the Cloak of IsolationAs the years go by, there's a subtle weight that descends, a deepening sensation of isolation that accompanies the unrelenting hold of narcolepsy. It is more than the neverending struggle... By Iris Vasconcelos3 min readBookmark for laterReactions 0 reactions Comments0 comments
Picking Up the Controller: IH and Video GamesWhen I was a kid, I loved playing video games. The first games I can remember getting my hands on were Barbie Horse Adventures and Sims 3: Date Night. My... By Lauryn Bhavnani3 min readBookmark for laterReactions 0 reactions Comments0 comments
This Can't Be Happening to MeRecently, I was experiencing some tingling in my foot. I am trying to do a better job of noticing when my body is communicating with me. I am 26, and... By Tre Burge3 min readBookmark for laterReactions 0 reactions Comments0 comments
Grooming With NarcolepsyGrooming with narcolepsy isn’t for the faint of heart. As a person with narcolepsy, every little bit of effort that I dedicate to one part of my life is unable... By Tatiana Corbitt3 min readBookmark for laterReactions 0 reactions Comments0 comments
To Work or Not — That IS the Question!I received notice today that vocational rehab has a spot open for me. This program is my last attempt to enter the workforce again. I will be starting with one... By Jenean3 min readBookmark for laterReactions 0 reactions Comments1 comments
New Year, New Goals: Knowing Your WorthWe have come to the end of 2023 and are moving into 2024. As with millions around the globe, a new year brings new goals, resolutions, ideas, and targets. We... By Kerly Joy Bwoga4 min readBookmark for laterReactions 0 reactions Comments0 comments
The Curious Link Between Narcolepsy and ADHDI’ve realised that since I was diagnosed with narcolepsy, I’ve learned so much about myself, and I continue to do so the more time goes by. For a while, I... By Iris Vasconcelos2 min readBookmark for laterReactions 0 reactions Comments25 comments
New Narcolepsy, New LifeIt is possible to be "born with" narcolepsy and never experience life without it. However, I was not born with narcolepsy. My narcolepsy onset in my college years following a... By Tatiana Corbitt2 min readBookmark for laterReactions 0 reactions Comments0 comments
Support SystemsIn January 2024, it will be 4 years since being officially diagnosed and starting my idiopathic hypersomnia advocacy journey. When I started doing my advocacy work, I felt alone and... By Lauryn Bhavnani2 min readBookmark for laterReactions 0 reactions Comments0 comments