Nicole Kenyon

Narcolepsy Community Advocate Nicole KenyonNicole was previously an advocate on

Diagnosed with Type 1 Narcolepsy back in 2014, I had unknowingly been fighting the never-ending battle that is Narcolepsy dating as far back as 1999. Throughout the duration of my diagnosis I endured unruly mistreatment by medical professionals and helplessly watched others rob me of the option to pursue opportunities every person deserves to experience.

In spite of all the setbacks, I have and continue to defy the stigma that comes with living with Narcolepsy and will not stop until there is a change in the status quo.

As someone who has unknowingly experienced the disadvantages as a young adult living with Type 1 Narcolepsy, I strive to advocate for those who are also battling a disadvantage that makes living a life of independence next to impossible.

To decrease diagnosis time it is crucial to spread awareness to those who are accountable for shaping future generations. In efforts to do so, I have made it my mission to work with congress as well as school district officials as an advocate for children and young adults living with Narcolepsy. I strive to work towards implementing legislation that will accommodate needs that are failing to be met when receiving a promised education.

As of January 2020, diagnosed with Multiple Sclerosis.

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