My Top 7 Narcolepsy Blogs

I’ve always been an extremely curious person and can spend hours on the internet simply searching for random things that interest me.

When I was diagnosed with narcolepsy, it took me almost 2 years to actually come to terms with seeing myself as a “chronically ill” person. I don’t know if this is something that anyone could possibly relate to, but for me, seeing myself as anything but “normal” took quite a while.

It was hard to find personal stories of living with narcolepsy

As the pandemic emerged and we settled into our daily lives, it was actually somewhat beneficial for me because it forced me to stop and have time to finally explore what it meant to live with narcolepsy.

What I discovered was that it wasn’t all that easy to find many personal accounts of people living with narcolepsy. I didn’t want a scientific explanation of my symptoms; I wanted to find authentic, real, first-hand experiences.

The value of the personal experience

I feel it’s extremely important for us as a community to find and share the content of and support those who are willing to disclose their innermost thoughts to the world so that they can not only raise awareness but also help us not feel so alone in our journeys.

As a blogger myself, I can tell you that it is not easy to expose your greatest moments of weakness, embarrassment, and shame.

My top 7 narcolepsy blogs

With this in mind, I decided to share my top 7 narcolepsy blogs.

There are a handful of other personal blogs of people living with narcolepsy, but these are the ones I found most interesting and helpful and have also been recently updated.

1. The Madcap Miss Adventures of a Narcoleptic

Madcap Narcolepsy is a website/blog created by a woman named Gina Dennis and is mainly focused on her experience of choosing to stop taking medication and opting for a more natural method of managing her symptoms.

I found her blog colourful, relatable, and very much informative. She is very forthcoming about the fact that she is not a doctor but is simply sharing something that has been helpful for her and her family. It’s definitely worth a read!

2. Elle’s Blog

Elle is a remarkably talented design graduate from Australia and created her website in 2012 with the aim of being a source of information for people with narcolepsy, as well as anyone out there who might want to know more about this condition.

Despite not having been updated in a while, Elle’s blog is still one of my favourites! It continues to be the most informative and well-structured blog of all.

3. The Girl Who Ran Away in Her Sleep

This blog is an incredibly authentic story and a very interesting read! If you are on Instagram you will probably already be acquainted with “The Girl Who Ran Away in Her Sleep,” but I would definitely recommend reading her full story!

4. Going Beyond Coping

Dawn’s blog “Going Beyond Coping” is truly powerful! Dawn shares her story about living with not only narcolepsy with cataplexy, but also nocturnal myoclonus, restless legs syndrome, fibromyalgia, myofascial pain syndrome and symptoms of Sjogren’s syndrome and POTS.

Despite all of this, she is one of the strongest and most positive advocates I have ever come across!

5. Claire Crisp’s Blog

Claire Crisp is a UK national award-winning author and advocate for children with narcolepsy due to her daughter’s narcolepsy diagnosis following the 2010 H1N1 vaccine.

Her blog is unique and provides a lot of pertinent information and perspectives.

6. Brooke Buckley

Brooke Buckley was diagnosed with narcolepsy in 2019 at the age of 22 after having symptoms for almost 7 years. The blog is very much focused on her thoughts and experiences and is a very easy read!

7. Life in Flashes Blog

Far from trying to promote my own blog, I decided to include it in this list as I genuinely feel that it can provide an extremely detailed journey that could hopefully be beneficial to some that maybe could relate!

I hope that these can offer some help, and if you know any other blogs that you enjoy, please share them with us!