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Narcogirl66

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  1. "Do you still think there's no one in my house? I woke up this morning on the floor my glasses were on the bed and I don't remember anything. I'm forgetting things so I'm wondering if I'm having seizures?"

    1. Thank you for sharing this - I know these episodes have been distressing, and finding yourself on the floor without remembering how you got there would be scary for anyone.

      I want to reaffirm what we shared previously: given the injury and the memory gaps, please do get evaluated by a doctor soon, and if you have ongoing safety concerns about your home specifically, that's something local law enforcement is best positioned to look into, not something we're able to assess here.

      One thing that can be worth mentioning to your sleep specialist, since it does relate to narcolepsy: some people experience "automatic behavior" - continuing to move or act during a microsleep with no memory of it afterward. (https://narcolepsy.sleep-disorders.net/living/automatic-behavior) If that's part of what's happening, it's a useful detail to bring to your doctor when discussing these episodes, along with anything else you've noticed (timing, what you were doing beforehand, any cataplexy or sleep paralysis).

      We're glad you're part of this community and want to keep supporting you around living with narcolepsy. We won't be able to speak further to what may or may not be happening in your home overnight - that's really outside what we can evaluate - but please keep sharing how you're doing and what your care team says!

      Warmly, Reggie - Narcolepsy.Sleep-Disorders.net team member