The mask we wear with narcolepsy

Narcolepsy is definitely the biggest challenge in my life. I’m 28 years old and I’m still struggling to understand my own body. It always feels to be rapidly changing in some way.

The ups and downs of narcolepsy

Somedays I feel like I’m ready to take on anything, I’m motivated to be the best version of me. And then there are days that hit me like a brick wall. I begin to doubt everything I’m working towards. I get depressed, feel alone and a lot of days I feel that I am battling a different person within myself. I try to stay positive, do my best to not feel angry towards my condition, but it does get hard. It’s hard to forget something that is constantly there to tap you on your shoulder reminding you that your not in control.

Medication not helping

Some days it’s hard to realize that NARCOLEPSY controls you, and there’s not much you can do to change that. Sure we can mask it a little with medication, but if I’m being Completely honest with myself I hate my medication. I hate not being strong enough on my own. I also hate the fake mask it provides us, sure my meds help me tremendously, but medication doesn’t make narcolepsy go away completely, not even temporary. They only allow us to fool others that were ok. But truth is… Meds only work half way. I still feel drained after a meal, I still find myself more tired than the average person could probably imagine becoming in a matter of seconds. I’m grateful for my meds, because the help me function but I’m also ashamed of them. Wish there was a cure for us but most of all I wish others could understand the amount of strength we must have to carry on life day to day.