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Fill in the blank: My most frustrating narcolepsy symptom is _____.

From excessive daytime sleepiness to vivid dreams, what is your most frustrating symptom of narcolepsy? Share in the comments below!

  1. Missing out on fun activities with my friends and family because I am at the mercy of my body and if the exhausted takes over there is nothing I can do.

    1. Falling asleep in a flash & not realizing it! Then all of a sudden I'll wake up with my face in a dish of food or with my head in a pot full of water in the sink. It's very scary!
      I'm always sleepy during the day but wide awake most of the night too.

      1. That could be so dangerous. Have you found any medications that help with both the sleep attacks and the insomnia? - Lori (Team Member)

    2. Probably excessive Daytime time Sleepiness. It effects my ability to drive taking away my independence.

      1. feeling very drain

        1. Hi . I wish you could wake up one morning with tons of energy and feeling ready to take on the world. Sending lots of gentle hugs your way. - Lori (Team Member)

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