Allison Echols
From excessive daytime sleepiness to vivid dreams, what is your most frustrating symptom of narcolepsy? Share in the comments below!
CommunityMemberbbe155 Member
Sleep Paralysis is equal w/ Excessive Daytime Sleepiness
Kaiya2979 Member
I have insulin resistance so when my blood sugar spikes or drops I pass out. Normally, I would get sleepy or groggy but coupled with narcolepsy I just pass out into this trace where I’m paralyzed and sometimes with cataplexy my lungs or I don’t even know but it just gets hard to breath like my mind forgets so I have to remind myself. And it hurts after sometimes when you fall into positions that are unsupportive. I always sit up with my hand under my chin but I’ve fallen asleep so many times like that that it’s kind of just makes me sleepy, but if I don’t my head will hit my computer or I’ll risk like compressing my throat with my chin to my chest. Also when I’m stimulated too long like on devices I start like twitching and my brain fizzles out same when I find something really funny, my automatic breathing function shuts down and I’m gasping for air.
Kaiya2979 Member
Lori.Foster Community Admin
hldryer Member
Cataplexy and Excessive Day time sleepiness are both equally the most frustrating symptoms. Cataplexy is because my extreme dependence on medication. The side effects caused by the medication caused me to develop lymphodema in both my legs. The lymphodema can cause cellulitis randomly and put me in the hospital for at least three days. I have found that doing lymphatic therapy had helped. However I need to go three days a week for an hour each visit. The excessive day time sleepiness of course effects my ability to drive depending on how I am feeling. It is very inconvenient. Thankfully I have a great support system. It just gets frustrating to ask for a ride so much.
Lori.Foster Community Admin
Aussiekaren Member
Realizing that I’m falling asleep during an important work meeting and am completely helpless to do anything about it.
Lori.Foster Community Admin
Hi