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Read conversations, start a discussion, and connect with others about narcolepsy.

FeaturedActive 7 days ago

My story: Can anyone relate?

Hello everyone, I am writing this at 4am, as per ususal, I have been awake every hour on the hour since midnight. This post will be a bit long, I...

FeaturedActive 7 days ago

Fill in the blank: My most frustrating narcolepsy symptom is _____.

From excessive daytime sleepiness to vivid dreams, what is your most frustrating symptom of narcolepsy? Share in the comments below!...

Active 2 days ago

How long did it take you to truly accept your narcolepsy diagnosis?

In this poll (https://narcolepsy.sleep-disorders.net/vote/poll/20931) Narcolepsy community members shared when they accepted their diagnosis. Here, they explain what helped them come to terms with it....

Active 2 days ago

Have you felt stigma because of your narcolepsy?

Sometimes narcolepsy can have stigma that comes with it; some might confuse it with laziness or lack of time management for sleep. What stigma's have you experienced because of your...

Active 6 days ago

Driving - Travel - How do you manage?

How do you manage daily life regarding driving? My radius is approximately 5 miles, and that is after a nap and with medications. How do people with narcolepsy manage to...

Tips for Managing Brain Fog

Do you experience brain fog? If so, how do you deal with it? What tips do you have for others that also experience brain fog?...

What would you tell a current or future romantic partner about how to love you as a person with narcolepsy?

Narcolepsy community members reveal how they want to be loved....

Does anyone experience recurring catatonia with cataplexy and constant sleep attacks?

Health services in my area are unaware of narcolepsy resulting in misdiagnosis and incorrect treatments. At age 18 sudden onset of symptoms started during the pandemic, psychiatry and neurology ruled...

Nightmares

Do you experience nightmares as part of your narcolepsy symptoms and do they affect you even after waking?...

Paddle board safety?

I just read a post about someone that drowned because of not using a life vest. I always paddle with someone else and I wear a necklace with a large...

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