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Read conversations, start a discussion, and connect with others about narcolepsy.

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Fill in the blank: My most frustrating narcolepsy symptom is _____.

From excessive daytime sleepiness to vivid dreams, what is your most frustrating symptom of narcolepsy? Share in the comments below!...

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What’s helpful during cataplexy attacks?

Cataplexy attacks can be outwardly shocking to observe. They can also be dangerous for those of us who experience them. When I have full-body cataplexy attacks the people around me...

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Have you felt stigma because of your narcolepsy?

Sometimes narcolepsy can have stigma that comes with it; some might confuse it with laziness or lack of time management for sleep. What stigma's have you experienced because of your...

Active 4 days ago

Daughter with narcolepsy and cataplexy

She doesn’t want to take her meds anymore. She says they alter her personality. She recognises she needs them to learn ( she also has ADHD and Autism) She is...

Active 4 days ago

How long did it take to get diagnosed with narcolepsy?

Active 4 days ago

The one thing that eliminated my cataplexy

You can live a full and happy life with Narcolepsy Type 1. How do I know this? Because I went scurrying to a Doctor the minute that I started having...

FeaturedActive 5 days ago

Explaining Narcolepsy to Others

How do you explain narcolepsy to others in your life? Did you share your diagnosis right away or wait?...

HELP!!! Charged with OWI because of N medication

Is there anyone else that has dealt with this? I am being charged with an Operating while Intoxicated on my own Narcolepsy medication. The officer said he thought I was...

At What Age Were You Diagnosed With Narcolepsy?

Dating With Narcolepsy

How does narcolepsy impact your dating life, and what strategies have you found helpful? How can potential partners help someone with narcolepsy feel supported and understood? For those in relationships...

A video series, an article, and a tool.

My efforts are about trumpeting towards the lived human experience with Narcolepsy. Shedding light on the overlap and interconnected vast expansive symptoms, going beyond some of the current consensus that...

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