Skip to Accessibility Menu Skip to Login Skip to Content Skip to Footer

Tell us about your symptom and treatment experience. Take our survey here.

Forums

Read conversations, start a discussion, and connect with others about narcolepsy.

Featured

Fill in the blank: My most frustrating narcolepsy symptom is _____.

From excessive daytime sleepiness to vivid dreams, what is your most frustrating symptom of narcolepsy? Share in the comments below!...

Featured

What’s helpful during cataplexy attacks?

Cataplexy attacks can be outwardly shocking to observe. They can also be dangerous for those of us who experience them. When I have full-body cataplexy attacks the people around me...

Active 5 days ago

Cataplexy & Intimacy

I really don’t want to be posting this, since my or anyone else’s sex life isn’t something I ever want to discuss in a public forum, but I have questions...

Active 7 days ago

Narcolepsy & a Cardiovascular Co-morbidities

I have recently discovered that Narcolepsy, more specifically the typical lifestyle adopted by those with narcolepsy, indirectly increases the risks of heart issues. The primary lifestyle or behavior that many...

Active 8 days ago

Is Eating After Taking a Xywav Dose Drug Abuse?

I keep getting told every single time I late night snack that I'm abusing Xywav at this point because I'm up snacking. Even if I'm only snacking an hour past...

A poem about hypersomnia

Her Hypersomnia Once swift to get up, she now trembles While dreaming of a rising sun. Her eyes, heavy, resist the call of light. Her mind, foggy, fails to focus...

At What Age Were You Diagnosed With Narcolepsy?

What Are Some Narcolepsy Support Groups?

Support groups and organizations are great resources to find help with narcolepsy. What groups have you heard of, or are a part of? How have these organizations helped you?...

Have you felt stigma because of your narcolepsy?

Sometimes narcolepsy can have stigma that comes with it; some might confuse it with laziness or lack of time management for sleep. What stigma's have you experienced because of your...

Narcolepsy Comorbidities

Do you have any other health conditions alongside narcolepsy? Have you found any effective ways to manage both your narcolepsy and other condition(s)? Share in the comments below!...

Featured

Narcolepsy Misconceptions

What are some of the biggest misconceptions about narcolepsy?...

Categories

Select a category to find topics that interest you.