The Chronic Illness HouseholdPicture this: 2 best friends living together in their mid-20s, in their dream household, with 2 adorable puppies. We go to cafés every weekend, go to dog parks, watch movies...Reactions0reactionsComments1 comments
Working From Home: The Good, the Bad, and the UglyI am sure so many of us have experienced the ups and downs of working from home over the last 2 years. I remember when COVID-19 lockdowns first happened in...Reactions0reactionsComments0 comments
Go to Sleep!This is a little reminder for myself and anyone else out there who may need it. You have narcolepsy – a chronic condition that causes sleepiness. This isn't your average...Reactions0reactionsComments2 comments
Juggling Chronic IllnessesYou know when you think you have everything figured out, and then life throws you a curveball? Well, the last 18 months have been just one curveball after another for...Reactions0reactionsComments4 comments
The Trauma of DisbeliefMedical trauma is real and can be incredibly distressing. For those of us with chronic illnesses like narcolepsy, medical offices tend to become our second home, and so we really...Reactions0reactionsComments3 comments
Crying Over Spilled MilkYou know those days where you feel like you are being tested by the universe? Anything and everything that could go wrong seems to be going wrong, and you are...Reactions0reactionsComments4 comments
Finding CommunityLet me start by saying, without the online narcolepsy community that I have found, I would not be where I am today. It is amazing that a bunch of people...Reactions0reactionsComments2 comments
Narcolepsy and CreativityEarlier in my life, if someone had asked me if I considered myself to be a creative person, I would've quickly said no. I was the science and maths nerd...Reactions0reactionsComments1 comments
Meet Our Advocate – Judy FergusonAt Narcolepsy.Sleep-Disorders.net, we are thankful for our amazing advocates who share their experiences of living with narcolepsy. In our advocate spotlight interview series, we get to know our advocates better...Reactions0reactionsComments4 comments
Learning to Put Myself FirstI have always been the kind of person who puts myself last, who worries about everyone else's needs and wants before my own. But if narcolepsy has taught me one...Reactions0reactionsComments12 comments
The Queen of FidgetingHave you ever had someone think you were being rude because you couldn't sit still or because you were constantly fidgeting? I know that feeling all too well! For years...Reactions0reactionsComments12 comments
Narcolepsy's Cloak of InvisibilityThere is some debate as to whether narcolepsy is truly an invisible illness. I mean if you look close enough you can see the signs that someone is struggling with...Reactions0reactionsComments12 comments
When “How Did You Sleep?” Becomes a Loaded QuestionSuch a simple question that we all ask our loved ones regularly. "How did you sleep?" Each morning when my partner wakes up, we will always ask each other this...Reactions0reactionsComments2 comments
Sleep Is My SuperpowerLooking back on the last 10 years of my life, there were definitely some red flags that should have led me to seek help for my sleepiness. My friends and...Reactions0reactionsComments3 comments
The Bumpy Road to DiagnosisNarcolepsy is notorious for being a difficult disorder to diagnose. It can take years for patients to be diagnosed, and they can often be misdiagnosed in the process! I want...Reactions0reactionsComments0 comments
Behind the Red DoorImagine laying in your bed awake, but completely unable to move, or speak, while intruders approach your bedroom. You just lay there passively waiting for it to be over while...Reactions0reactionsComments2 comments
Half Asleep but Still DreamingEach day that I live with narcolepsy, I am learning how to better describe so many of the bizarre symptoms that I experience on a day to day basis. The...Reactions0reactionsComments23 comments