The Struggle and Stigma of Narcolepsy MedicationsAs people with narcolepsy, most of us take some type of medication every day. They help us to live as close to “normal” as possible. However, acquiring the medications we...Reactions0reactionsComments8 comments
5 Tips to Be Successful in College With NarcolepsyDealing with narcolepsy and the workload of college can be a stressful experience. You could have 4 exams, 7 assignments, a pop quiz, and a 15-page paper all due within...Reactions0reactionsComments0 comments
Narcolepsy, Dreams, and the "Emotional Hangover"Most people with narcolepsy will know what it’s like to experience wild dreams. With our brains hard-wired to lapse into REM at a moment’s notice, we can sometimes feel like...Reactions0reactionsComments35 comments
World Narcolepsy Day - Take Over the WorldTaking over the world one story at a time.Pinky: “Gee, Brain, what are we going to do tonight?” Brain: “The same thing we do every night, Pinky. Try to take...Reactions0reactionsComments0 comments
Relationships and Narcolepsy: 3 Important ConversationsWhen it comes to relationships, every couple will have their issues - but when one of you has narcolepsy, this can bring up some unique challenges! As a person with...Reactions0reactionsComments0 comments
Take the Connected Health Survey!In the digital age, there are so many devices, websites, and technologies related to health. From fitness trackers to mobile apps, we use connected health technology to track symptoms, monitor...Reactions0reactionsComments0 comments
Narcolepsy and Stress-Induced Sleepiness and CataplexyExcessive daytime sleepiness is a symptom experienced by everyone having narcolepsy type 1 (with cataplexy and hypocretin deficient) and narcolepsy type 2 (without cataplexy and not hypocretin deficient). This profound...Reactions0reactionsComments3 comments
Can Narcolepsy Take a Seat?Imagine you’re on a train on your way home from work. It’s been a long day. Despite taking your regular nap at lunch you can feel yourself fading. The gentle...Reactions0reactionsComments1 comments
4 Terms I Created to Describe My NarcolepsyOver the years I have created terms to describe my narcolepsy. It's so hard to describe how I feel sometimes! When I say I am tired to someone who has...Reactions0reactionsComments11 comments
Fine-Tune Your Narcolepsy SymptomsBesides any medication a doctor can prescribe you, you can do some things yourself to fine-tune your narcolepsy symptoms. The following lists are based on positive patient experiences which could...Reactions0reactionsComments4 comments
My Secret to Reducing Narcolepsy SymptomsJune 2020 is my 1 year anniversary of sharing my narcolepsy story on social media. When I started, I had finally overcome a large portion of my symptoms of narcolepsy, naturally...Reactions0reactionsComments1 comments
Everyone's Tired... Right?Growing up, I never thought twice about my sleepiness and I didn't question it either. After I was diagnosed with narcolepsy, I would constantly think about how my brain was wired...Reactions0reactionsComments1 comments
Power of Positive Thinking: Silencing the Inner CriticThe average time to diagnosis for people with narcolepsy is 8 to 15 years. By the time of diagnosis, a person may have spent as much as half a lifetime...Reactions0reactionsComments1 comments
Relationships and Narcolepsy: Managing EmotionsWhen it comes to relationships, every couple will have their issues - but when one of you has narcolepsy, this can bring up some unique challenges! As a person with...Reactions0reactionsComments3 comments
Hypnagogic and Hypnopompic Hallucinations: Shadow People and Demon BunniesLeading up to and after my diagnosis of narcolepsy with cataplexy, excessive daytime sleepiness most interfered with my quality of life. The sleepiness preoccupied my daily thinking, but that was...Reactions0reactionsComments13 comments
People-First Language: Person With Narcolepsy, Not NarcolepticThis article is about my preference for person-first language, such as identifying as a person having narcolepsy with cataplexy, as opposed to narcoleptic and cataplectic. It is important for me...Reactions0reactionsComments1 comments
The Bumpy Road to DiagnosisNarcolepsy is notorious for being a difficult disorder to diagnose. It can take years for patients to be diagnosed, and they can often be misdiagnosed in the process! I want...Reactions0reactionsComments0 comments
Relationships and Narcolepsy: Communicating Our NeedsWhen it comes to relationships, every couple will have their issues - but when one of you has narcolepsy, this can bring up some unique challenges! As a person with...Reactions0reactionsComments4 comments
Inside My Unmedicated Narcoleptic LifeHave you ever wondered what it might be like to have narcolepsy and be unmedicated? I have always said, that there is no wrong or right way in how we...Reactions0reactionsComments3 comments
Sleepy Strength Is More Than Being Strong and ExercisingExercise and strength training have been a part of my life as long as excessive daytime sleepiness. By the time I was in middle school, I had begun to struggle...Reactions0reactionsComments3 comments
