Living

Narcolepsy affects much more than sleep. It can impact weight as well. In fact, some research suggests that people with narcolepsy are more likely to live with weight issues such...

The longer I live with narcolepsy, the more I realize how I’ve had to adapt to life as a result of my symptoms. The list of things I have to...

Narcolepsy can be tricky for adults to understand. It can be even harder for kids. If your child has narcolepsy, their siblings might have lots of questions. They might also...

Living with narcolepsy can often feel like an isolating experience, but I’ve come to realize how powerful it is to find a community that truly understands. After years of struggling...

I felt compelled to write another “A Day in the Life” piece about living with idiopathic hypersomnia. The first article I wrote detailing my day to day was about an...

I not long ago read a journal article discussing the “challenges” of parenting a child with narcolepsy. At first, I could hardly believe what I was reading. Here were doctors...

As someone living with narcolepsy, a hidden disability that most people can’t immediately identify, the sunflower lanyard has become an essential part of my life. Before the lanyard, I relied...

There is a lot of health information available on the internet these days. From personal blogs and online magazines to government websites and beyond, advice about your health is available...

Narcolepsy symptoms make life hard. And misunderstandings surrounding narcolepsy symptoms can make life harder! Effectively communicating our narcolepsy-related needs is very important. Effective communication is important for bridging the gap...

Imagine living life constantly on the edge, where a simple joke could cause your knees to buckle, or a surge of anger might send your body into paralysis. This was...

I traveled from London, departing on a Friday evening and arriving at my destination Australia, Queensland, at 7:00 AM Sunday. The journey was smooth, and I managed to stay awake...

I’ve had so many people give unwelcome medical advice about my narcolepsy symptoms. “Try going gluten-free! My gut flora was being destroyed by gluten, and once I stopped eating it...

If you have met me, then you know that I am the biggest nerd possible. Video games, anime, DND, board games, etc.; you name it, I'm more than likely have...

Living with narcolepsy type 1 has made me extremely aware of how this condition impacts every part of my life, even my menstrual cycle. For many women, that time of...

Navigating the corridors of healthcare systems can sometimes feel like a journey through a dense forest with no map. Each twist and turn brings new encounters, some smooth, others fraught...

Here at Narcolepsy.Sleep-Disorders.net, we often talk about staying awake. However, sleep health and the things that help us get quality sleep are also important. Some may have something that helps...

I had the privilege of attending a national narcolepsy conference, something I never thought I would be able to do! For one, it is difficult for me to travel (and...

As someone living with narcolepsy, I have often wondered if my condition makes me an unreliable person. Narcolepsy is an incredibly unpredictable condition, so it seems only logical to me...

Traveling doesn't start the day you get on the plane, train, or bus; I think traveling starts from the day you purchase your ticket. From that moment you hit preparation...

Have you ever walked into a doctor’s office hopeful that you will receive the help you need, only to leave an hour later feeling rushed, misunderstood, and generally awful? This...