Caring for a Child With a Rare DiseaseRaising a child is never easy, but it can be especially challenging if your child has a rare disease. There are 5,000 to 8,000 different rare diseases that all present... By Editorial Team 2 min readBookmark for laterReactions0reactionsComments0 comments
At What Age Were You Diagnosed With Narcolepsy?A timely narcolepsy diagnosis can make a huge difference in the lives of people living with this chronic sleep condition. But diagnosing narcolepsy can be challenging, especially in children who... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments0 comments
Ways to Support Your Child With NarcolepsyNarcolepsy is a chronic sleep-wake disorder that can affect children. It causes excessive daytime sleepiness and episodes where they suddenly fall asleep (sleep attacks). This can put a child at... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments0 comments
Transitioning From Pediatric to Adult Care With a Rare DiseaseYoung people living with a rare disease are living longer than ever. That’s the good news. The less-good news is that not many places exist for teens and caregivers to... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments0 comments
Narcolepsy’s Effects on ChildrenNarcolepsy is often associated with adults. But narcolepsy can also affect children, although it is quite rare. Narcolepsy often impacts children differently than it impacts adults. This can cause unique... By Editorial Team 4 min readBookmark for laterReactions0reactionsComments0 comments
Can Stress Trigger Narcolepsy Symptoms?Narcolepsy is a sleep disorder that makes it hard to stay awake. It causes excessive daytime sleepiness (EDS). EDS can make it hard to work, be social, or have relationships... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments0 comments
Who’s Who in the Sleep Clinic?If you’re going to participate in a sleep study, you may encounter more than one person working at a clinic, and several of those people may not be your sleep... By TK Sellman3 min readBookmark for laterReactions0reactionsComments2 comments
Community Views: How Can We Help People Experiencing Cataplexy?The first time someone sees – or experiences – an episode of cataplexy, they may not know what it is.Cataplexy is a sudden loss of muscle tone that leads to... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments2 comments
Why Narcolepsy Patients Are Switching from Xyrem® (SXB) to Xywav® (LXB)Doctors have long prescribed sodium oxybate (Xyrem®) for narcolepsy. Xyrem, or SXB, helps with cataplexy, excessive daytime sleepiness, and disrupted nighttime sleep. However, SXB has a lot of sodium in... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments0 comments
How Common Are Mental Health Disorders With Narcolepsy?Doctors use the term "comorbidity" to describe a condition that occurs at the same time as another condition. Comorbid illnesses can interact in ways that make both worse. A common... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments0 comments
Digital Health vs. Digital TherapeuticsTechnology is now a common way to deliver healthcare. Digital health products help prevent, diagnose, or manage chronic conditions. Devices range from wellness apps to artificial intelligence and wearable devices... By Editorial Team 2 min readBookmark for laterReactions0reactionsComments0 comments
What Are Digital Therapeutics?Digital therapeutics (DTx) first entered clinical discussions in the 1990s. The idea was that technology could improve healthcare access. It could help overcome barriers of location, time, and resources. This... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments0 comments
What Is the Difference Between Narcolepsy Type 2 and Idiopathic Hypersomnia?If you have excessive daytime sleepiness that interferes with how you function, you may wonder if you might have narcolepsy. The sleep disorder occurs equally in men and women and... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments1 comments
What Is Type 2 Narcolepsy?Narcolepsy is a sleep disorder that causes overwhelming sleepiness during the day. It is usually diagnosed between the ages of 10 and 30 and is a lifelong disorder. There are... By Editorial Team 4 min readBookmark for laterReactions0reactionsComments0 comments
Why Participate in a Clinical Trial?Medical research often uses clinical trials in order to find new information about diseases and treatments. Clinical trials are studies that evaluate medical, surgical, or behavioral intervention. It is often... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments0 comments
Clinical Trial TerminologyThere are several terms that are commonly used when discussing clinical trials. Here are some that come up often:Adverse event: an undesirable experience associated with the use of a medical... By Editorial Team 1 min readBookmark for laterReactions0reactionsComments1 comments
Understanding Clinical TrialsA clinical trial is a research study that is conducted to determine whether a specific medical intervention, such as a treatment, device, procedure, or change in behavior is safe and... By Editorial Team 2 min readBookmark for laterReactions0reactionsComments0 comments
