Understanding Cataplexy in Children and Ways to Manage ItFor parents navigating the complexities of their child’s narcolepsy diagnosis, one of the most perplexing and often unsettling symptoms can be cataplexy. Imagine your child, mid-laugh, suddenly losing muscle tone...reactionscomments
Setting Your Child Up for Success: Initial Conversations With Their School and TeachersStarting school with a new narcolepsy diagnosis can feel like a big hurdle for both you and your child. To ensure a smooth transition and set your child up for...reactionscomments
Navigating Playdates and Social Life for Your Child With NarcolepsyNavigating playdates, extracurriculars, and social life for a child with narcolepsy presents unique challenges. It requires a multi-faceted approach. Narcolepsy is characterized by excessive daytime sleepiness (EDS) and often sudden...reactionscomments
Creating a Sleep-Friendly Routine for Children With NarcolepsyNarcolepsy can make it hard for kids to get good sleep. It affects how the brain controls sleep-wake cycles. This can lead to daytime sleepiness, sudden sleep attacks, and other...reactions2comments
Pediatric Narcolepsy: Myths and Facts You Should KnowThe word “narcolepsy” might bring to mind images of someone constantly yawning or falling asleep. While excessive daytime sleepiness (EDS) is a major symptom of narcolepsy, it is not the...reactionscomments
The Role of Sleep Studies in Diagnosing Pediatric NarcolepsySleep is essential for everyone, especially children. But what happens when a child's sleep patterns seem unusual? Sometimes, a sleep study can help doctors understand what is going on. These...reactionscomments
Understanding Sleep-Related Hallucinations in Children With NarcolepsyImagine seeing a giant spider crawling on your wall. You reach out to swat it, but your hand goes right through. The spider disappears. This might sound like a scary...reactionscomments
How Severe Is Your Child’s Narcolepsy?Narcolepsy is a sleep disorder that can affect adults and children alike. Doctors need a way to measure how severe a person’s narcolepsy is so they can track the condition...reactionscomments
How Nutrition and Exercise Can Help Manage Narcolepsy Symptoms in KidsNarcolepsy can make daily life challenging for kids. It can cause symptoms like excessive daytime sleepiness (EDS), cataplexy (sudden muscle weakness), sleep paralysis (being unable to move while waking up...reactionscomments
Pediatric Narcolepsy Treatment: What Parents Should KnowNarcolepsy is a chronic condition that can make life challenging for kids. But several treatments can help. Sleep specialists who diagnose and treat pediatric narcolepsy can help you find the...reactionscomments
Narcolepsy in Children and Teens Versus AdultsNarcolepsy is a neurological condition that affects the sleep-wake cycle. A hallmark symptom can be excessive daytime sleepiness (EDS). Narcolepsy affects both adults and children, but it may look different...reactionscomments
Caring for a Child With a Rare DiseaseRaising a child is never easy, but it can be especially challenging if your child has a rare disease. There are 5,000 to 8,000 different rare diseases that all present...reactionscomments
At What Age Were You Diagnosed With Narcolepsy?A timely narcolepsy diagnosis can make a huge difference in the lives of people living with this chronic sleep condition. But diagnosing narcolepsy can be challenging, especially in children who...reactions8comments
Ways to Support Your Child With NarcolepsyNarcolepsy is a chronic sleep-wake disorder that can affect children. It causes excessive daytime sleepiness and episodes where they suddenly fall asleep (sleep attacks). This can put a child at...reactionscomments
Transitioning From Pediatric to Adult Care With a Rare DiseaseYoung people living with a rare disease are living longer than ever. That’s the good news. The less-good news is that not many places exist for teens and caregivers to...reactionscomments
Narcolepsy’s Effects on ChildrenNarcolepsy is often associated with adults. But narcolepsy can also affect children, although it is quite rare. Narcolepsy often impacts children differently than it impacts adults. This can cause unique...reactionscomments
Can Stress Trigger Narcolepsy Symptoms?Narcolepsy is a sleep disorder that makes it hard to stay awake. It causes excessive daytime sleepiness (EDS). EDS can make it hard to work, be social, or have relationships...reactionscomments
Who’s Who in the Sleep Clinic?If you’re going to participate in a sleep study, you may encounter more than one person working at a clinic, and several of those people may not be your sleep...reactions2comments
Community Views: How Can We Help People Experiencing Cataplexy?The first time someone sees – or experiences – an episode of cataplexy, they may not know what it is.Cataplexy is a sudden loss of muscle tone that leads to...reactions2comments
Why Narcolepsy Patients Are Switching from Xyrem® (SXB) to Xywav® (LXB)Doctors have long prescribed sodium oxybate (Xyrem®) for narcolepsy. Xyrem, or SXB, helps with cataplexy, excessive daytime sleepiness, and disrupted nighttime sleep. However, SXB has a lot of sodium in...reactionscomments
