Ways to Support Your Child With NarcolepsyNarcolepsy is a chronic sleep-wake disorder that can affect children. It causes excessive daytime sleepiness and episodes where they suddenly fall asleep...reactionscomments
Narcolepsy’s Effects on ChildrenNarcolepsy is often associated with adults. But narcolepsy can also affect children, although it is quite rare. Narcolepsy often impacts children differently...reactionscomments
Caring for a Child With a Rare DiseaseRaising a child is never easy, but it can be especially challenging if your child has a rare disease. There are 5,000...reactionscomments
Transitioning From Pediatric to Adult Care With a Rare DiseaseYoung people living with a rare disease are living longer than ever. That’s the good news. The less-good news is that not...reactionscomments
What Is the Difference Between Narcolepsy Type 2 and Idiopathic Hypersomnia?If you have excessive daytime sleepiness that interferes with how you function, you may wonder if you might have narcolepsy. The sleep...reactions1comment
Narcolepsy in Children and Teens Versus AdultsNarcolepsy is a neurological condition that affects the sleep-wake cycle. A hallmark symptom can be excessive daytime sleepiness (EDS). Narcolepsy affects both...reactionscomments
Community Views: How Can We Help People Experiencing Cataplexy?The first time someone sees – or experiences – an episode of cataplexy, they may not know what it is.Cataplexy is a...reactions2comments
Why Narcolepsy Patients Are Switching from Xyrem® (SXB) to Xywav® (LXB)Doctors have long prescribed sodium oxybate (Xyrem®) for narcolepsy. Xyrem, or SXB, helps with cataplexy, excessive daytime sleepiness, and disrupted nighttime sleep...reactionscomments
Who’s Who in the Sleep Clinic?If you’re going to participate in a sleep study, you may encounter more than one person working at a clinic, and several...reactions2comments
Digital Health vs. Digital TherapeuticsTechnology is now a common way to deliver healthcare. Digital health products help prevent, diagnose, or manage chronic conditions. Devices range from...reactionscomments
What Are Digital Therapeutics?Digital therapeutics (DTx) first entered clinical discussions in the 1990s. The idea was that technology could improve healthcare access. It could help...reactionscomments
Why Participate in a Clinical Trial?Medical research often uses clinical trials in order to find new information about diseases and treatments. Clinical trials are studies that evaluate...reactionscomments
Understanding Clinical TrialsA clinical trial is a research study that is conducted to determine whether a specific medical intervention, such as a treatment, device...reactionscomments
Clinical Trial TerminologyThere are several terms that are commonly used when discussing clinical trials. Here are some that come up often:Adverse event: an undesirable...reactions1comment
