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For some of you who have ADHD : Do you have the same stimulants for ADHD & Narcolepsy? Does it work for both at the same time ?
Yeah, I take Adderall. 30 mg twice a day
I struggled both as a teenager and as an adult with occasional (both prescribed and illicit) stimulant abuse. Because of this, it was hard and frustrating for me to get physicians to understand that chronic fatigue and excessive daytime sleepiness had been struggles for me since early adolescence. I told them that it did not matter if I slept two hours or twenty- I did not feel rested with any level of sleep ever and if left to my own devices I could sleep in perpetuity.
The clinician that finally recognized my condition as narcolepsy expressed that it's not uncommon for narcoleptics to seek stimulants to correct "wiring" problems enough to be functional, and that depressive symptoms with narcolepsy are sometimes secondary to the chronic fatigue which is why the stimulants seemed to help more with the "depression" than other classes of medications.
I am presently on Modafanil and it has been life-changing in terms of becoming a high-functioning adult who takes care of themselves. I feel it manages my narcolepsy better than traditional stimulants. That said, no drug is perfect and my biggest complaint about the medication is that it was sold to me as being much less addictive but I am very self-conscious and self-aware that I get anxious when my script is running low that I might not have medication on hand. Because I rotate shifts it was also considered a good choice for me under the impression that it would be safe enough if I had to take it at different times of the day now and then or not take it at all if it weren't necessary (like the first day after working three 12 hour shifts when I typically just want to rest). Unfortunately I find if I go without taking the medication for more than one day I experience significant and distressing mood lability with lots of tearfulness, hypersomnia to the point that I cannot drive even for a few minutes due to the danger of falling asleep, and binge eating behaviors.
Moderator & Contributor
Yes and kind of. We're still trying to find a good dosage and timing to be effective for both. It's important to mention I also have PoTS so stimulant use for me is tricky, so it takes a lot more finessing than the people who can just take 72 mg of ER adderall.
Moderator & Contributor