Explaining Narcolepsy to Others
How do you explain narcolepsy to others in your life? Did you share your diagnosis right away or wait?
I don't. Most everyone has no clue about it.
Hi
. We get it. Narcolepsy is exhausting enough by itself. It doesn't leave much energy for educating those who are new to it. Do those closest to you understand? Best wishes. - Lori (Team Member)
actually when I tell people i have type 1 narcolepsy they know what it is and have heard of it and have few questions
How awesome that they ask questions. The more awareness, the better. Do you mind answering them? Warmly, Lori (Team Member)
I just come out with it, to the point. Most people I tell are curious if it's like TV portrays it to be.
Hi
. That sounds like a good approach. How do you feel about the way TV portrays narcolepsy. Is it ever accurate? Best wishes. - Lori (Team Member)
I told my hubby right when I got home. Wish I hadn't. He did not believe the diagnosis and accused me of faking on the tests., like you can do that. I often feel very unsupported, misunderstood and alone. I have no one to talk to about so I am struggling to understand it myself. I do find this news letter very helpful and I am grateful for it. I have narcolepsy with cataplexis.
I wish you had more support from your husband,
. I hope he comes around over time. Do you think he might come with you to a doctor's appointment sometimes? Maybe hearing your diagnosis directly from a medical professional will help. Have you been diagnosed long? Are you on a good treatment plan? Please know we are here for you whenever you need extra support or someplace safe to vent. Best wishes. - Lori (Team Member)
