Difficult to vent about
Most my life I've endured humiliation and ignorant criticism from all parts of my life, so it's difficult to vent, or inform people, including my loved ones. Due to all the ignorance, deception, criticism, and humiliation I've faced, I often find myself questioning me. When I do let my walls down to inform people it has backfired so much I feel awful inside informing people now. Experiencing such has made me hate myself one to many times!
I'm sorry to hear that. I think one of the frustrating parts is having to plead people you love that this is something you are struggling with. I've talked to several people who have family that don't think their diagnosis real. That alone can any PWN to speak about it. I really appreciate you sharing this story and being vulnerable. Tre, Team Member. I am married to the most beautiful kind loving wife a man could ever want. I didn't understand or even try to find out how and why my wife feels and acts the way she does towards me because of her narcolepsy condition. I constantly got upset with her and made her feel like she was the problem not the condition. I told her I had enough of the way she was when she had a bad day and how there was no interaction on any level between us, she had bad days and then there were worse days.
I now know what it means when they say you don't know what you've got till it's gone.
To all the partners and children or loved ones who have some with narcolepsy and/or similar conditions, please take my advice do some research learn about the condition and give them all the love and support they need, even if they push you away it's not there fault they need all the love, support, patience and understanding you can give.Thank you for sharing this. It honestly brought a tear to my eye. Bless you for taking the time to learn about your wife's condition. I know that means more to her than she could ever express.
Xoxo/Zzz, GabrielleMan I am sending nothing but positive energy your way. I know it's September but let us know how you are feeling now. Let's change that username champ. ☺ Tre, Team Member
So sorry to hear that you are facing this. If you ever need anyone to vent to(judgement-free) I am only a message away! I was in the same boat & noticed that I had people just like that in my life and it was time to let them go. I only keep those who support me & have my best interest in my life. As you get older, it is inevitable for your circle to grow smaller. The opinion of others is a reflection of that person and how they feel within, it has nothing to do with you. You’re a brave, strong person. I hope 2022 brings you all the positivity and peace in the world.
I am sorry to hear that you've had these kind of experiences in the past. I struggle with sharing with people about my life because of how often I am invalidated when I do. Finding a community through narcolepsy support groups has helped me to learn that it matters who I share with. If someone doesn't accept my truth, that's their problem, not mine. It's easier to say than do, and I still struggle with this, but it has gotten easier than it used to be and I hope it will continue to. Thank you for sharing. Our community is here to support you. Warmly, Tatiana (narcolepsy.sleep-disorders.net Team Member)
