Tell us about your symptoms and treatment experience. Take our survey here.

caret icon Back to all discussions

feel very exhausted

i found out i had nacolepsy last year.i lost my job because of it ,i am takeing meds for it now.but at times i feel very exhausted and tired all time.its very hard dealing with it because i have to work 2 shift.there times i take short naps before i go to work.i just dont know what to do.its takeing toll on me everyday.

  1. i am dsp aid and im not aload take naps and i cant drink coffee due too my kidney stones,so i spend my time on internet when my cliet is sleep all day till i get off at 11;00pm to go home

    1. That must be difficult, . I am glad you have found ways to cope. Warm wishes. - Lori (Team Member)

  2. My heart goes out to you, . It can be so hard to find the right combination of medications and schedules when you have narcolepsy, especially since every person's journey is different. You can't just take the same approach someone else is taking. It will take time and lots of trial and error to figure out an overall treatment plan that is most effective for you. Are you aware that narcolepsy can be considered a disability? If your employer knows you have narcolepsy, you are protected by the Americans with Disabilities Act. That means, your employer has to make reasonable accommodations for you. Here is an article about workplace accommodations that might interest you: https://narcolepsy.sleep-disorders.net/living/workplace-accommodations. For you, accommodations might mean different or shorter shifts or a place to take nap breaks. It might be worth looking into. I hope this helps. Please know we are here for you whenever you need support or a place to vent. Gentle hugs. - Lori (Team Member)

    Please read our rules before posting.