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Fill in the blank: My most frustrating narcolepsy symptom is _____.

From excessive daytime sleepiness to vivid dreams, what is your most frustrating symptom of narcolepsy? Share in the comments below!

  1. Worst symptom for me is the sleepiness, not being able to enjoy a full day out, not being able to plan easily, not able to have grandson alot. Feeling isolated.

    1. Hi . That must be hard on you. Are you taking any medications to help with wakefulness? - Lori (Team Member)

  2. Inability to grasp a word or phrase I have used a thousand times. Friends & family trying to be gracious & wait for it to come to memory. Makes me feel ignorant & inconsiderate.

    1. We hear you, It's hard not to get down on yourself even when others are trying to be supportive and patient. Wishing you the best. - Lori (Team Member)

    2. I have this bad too, a word a simple word is no where to be found. Make me feel so dumb, most folk I know help out with the word but having a conversation can be so embarrassing

  3. Cataplexy and sleep paralysis

    1. Both can be awfully scary symptoms. How do you keep yourself safe during cataplexy attacks? Have you developed any coping skills for sleep paralysis? Gentle hugs. - Lori (Team Member)

  4. Difficulty waking up and automatic behavior making it almost impossible to be woken up.

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