Fill in the blank: My most frustrating narcolepsy symptom is _____.
From excessive daytime sleepiness to vivid dreams, what is your most frustrating symptom of narcolepsy? Share in the comments below!
Falling asleep or being extremely tired everywhere i go.
Cataplexy, I have pretty chronic C. I have a one to a few full attacks and many mild attacks every day. I can’t drive, I don’t take baths only showers, riding my bike has become an issue. It just bites. I don’t go anywhere alone. My independence is squelched in a big way. I can’t take most of the medications that really work on C.
Hi
. I see you are new here. Welcome! I hope that you can bring you cataplexy under control once you find a good doctor in your area. Some people find that cataplexy symptoms improve with age, but there is no way of knowing whether that will happen for you. Have you looked into clinical trials to see whether something new is in the pipeline that you might be able to take? Thinking of you. - Lori (Team Member)
falling asleep during the day or going to bed very late in the evening/morning
It sure messes with the rhythm of life, doesn't it,
? Do you have any coping techniques or take any medications to help keep you on track? Thinking of you. - Lori (Team Member)
It was hard for me to determine which symptom I would categorize as the most frustrating because so many seem equally frustrating. I decided that "not being able to remember what I was going to say or do" probably is the most frustrating because it happens constantly throughout every day! It has gotten worse over time.
That really can be frustrating,
. Is there anything that helps? Do you find people are fairly patient with you? Wishing you the best. - Lori (Team Member)
