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Fill in the blank: My most frustrating narcolepsy symptom is _____.

From excessive daytime sleepiness to vivid dreams, what is your most frustrating symptom of narcolepsy? Share in the comments below!

  1. Falling asleep with a cup of tea in my hand, and spilling it on myself and the cat on my lap. skylark 4446@

    1. Yikes! I can see why that's frustrating. Would it help to use a travel mug? That might at least limit the amount that can spill. Thinking of you. - Lori (Team Member)

  2. Missing out on fun activities with my friends and family because I am at the mercy of my body and if the exhausted takes over there is nothing I can do.

    1. Falling asleep in a flash & not realizing it! Then all of a sudden I'll wake up with my face in a dish of food or with my head in a pot full of water in the sink. It's very scary!
      I'm always sleepy during the day but wide awake most of the night too.

      1. That could be so dangerous. Have you found any medications that help with both the sleep attacks and the insomnia? - Lori (Team Member)

    2. Probably excessive Daytime time Sleepiness. It effects my ability to drive taking away my independence.

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