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I've been ignoring this for 25 years

Hi
Long story short, when I first started blanking out on car journeys it was checked out by a neurologist who gave me an eeg in front of flashing lights, which I now know was pretty pointless. He said whatever it was, it was mild so just try to put up with it
So after 25yrs of being unable to sit through a lecture ( I'm an academic..), conference meeting or dinner party, basically fighting it ( and not catching on how much worse that makes it), I got slapped with a disciplinary at work over stuff not done. Turns out being unconscious in meetings but great at hiding it has consequences - especially since it was me taking the minutes.

So a couple of trips to the gp who takes one look at me and tells me I have narcolepsy with cataplexy and she'll send me to neurology. I kind of knew but thanks to that first dismissal and the comments when I'm drowsy I'd persuaded myself into 'not really ill' thinking. Now I just want to get things sorted. Work have actually been OK now that they know what's going on.

Crazy thing - I work in the dark, often alone - never a problem. Ask me to follow a conversation with five people and I'll be face down on the desk in minutes.

Cheers
Ian the microscopist

  1. Welcome to the community, Ian. I'm glad you found us and I'm really glad that your employer is understanding now that you have a diagnosis. Sometimes it takes a serious incident like that to pull us out of the thinking we've been conditioned to for so long. For my father, it was a fall at work that finally led to his MS diagnosis after 40 years of symptoms. His employer wouldn't let him return without a CAT scan.
    Are you now on a good treatment plan?
    - Lori (Team Member)

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