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Read conversations, start a discussion, and connect with others about narcolepsy.

Active 2 days ago

At What Age Were You Diagnosed With Narcolepsy?

Does this sound like cataplexy, or could it be something else?

I fear this may be a long post, but I'm really hoping it can help me with finding answers. So, almost 2 years ago I first learned what cataplexy was...

Hyperinsomnia

I know this is a narcolepsy forum, but I have had insomnia for about 6 years at diffrent difficulties. For about 4 months now anytime I go to REM sleep(usually...

Sleep specialists opinon on collapsing

I was told sleep disorders cannot hurt you and refused test for narcolepsy even though i collapse because i fall asleep. I have had 7 fractures in last 3 yrs...

Sleep specialists opinon

I collapse on a daily basis because i fall aslepp i have had 7 fractures (confirmed) in last 3 yrs. I was told i do not have narcolepsy because its...

How Did You Get Diagnosed With Narcolepsy?

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Diagnosis delays

Were you misdiagnosed as another health condition first? How long did it take you to get diagnosed with narcolepsy?...

How long did it take to get diagnosed with narcolepsy?

Parenting with narcolepsy type 1

Hello, I am Jazmane, I am 30 years old, and I am a single mother of 2 handsome boys. Can you imagine the energy of a 7- and 2-year-old everyday...

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How often would you have a "good" day before treatment?

I haven't got treatment yet, but it just occured to me that I haven't had a day where I woke up in the morning feeling half decent, and then felt...

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