October 14, 2020
What jobs do you all have? I am finding that stress is influencing my narcolepsy too much. My job is just way too much stress and I need to find a new one. I am just curios what types of jobs you have found that works for you? I really need something that is full time, but it does not have to be.
April 1, 2021
I am a pediatric physical therapist. Physical therapy school was really challenging for me, but I got diagnosed while in PT school, and once I was diagnosed, it was a little easier to manage and I got accommodations in school and my teachers were very understanding and supportive. Working with kids as a physical therapist is a very active job, and I think being so active while at work helps keep me awake versus if I had more of a desk job. I work in an outpatient clinic, so I never have to work nights or weekends or be on call. I make my own schedule, so I can schedule time for a nap, and if I’m getting too stressed out, I can cut back on my workload. We also do not take walk-ins, so if I don’t have a patient scheduled, I don’t have to be there. The flexibility is really nice. I don’t know how I would do having a job without so much flexibility. 🤷🏼♀️ The other nice thing about working with kids is that most of the time they don’t even notice if I start to mix up the order of words or say the wrong word etc, and even if they do notice, I’m not worried about a 5 year old judging my inability to form coherent sentences. 😉
April 4, 2021
I totally agree with you that being on my feet helps to keep me awake more than an office job! I am a music teacher, and during the pandemic, we had to teach everything online. I found it really difficult to be sitting at my desk looking at a screen all day, and definitely needed a lot more naps than usual! I also am really lucky that I can make my own schedule which makes it so much easier to take naps and rest when needed!
However, my high school kids definitely notice when I stuff up my words and very much enjoy teasing me for it haha.
Take Care, Judy (Team Member)
February 2, 2021
Hi Tara! For me, it has also been a big struggle as I used to work as an event organiser and had to give that up because it was way too demanding. Since then I've been working at home with marketing and I think that's the only way really. Finding something that you can choose when, where and how much you work.lol.I hope this helped!
February 13, 2021
Hi Iris, thank you for replying! I have found that working from home has been best for me right now because of being able to work from home whenever I am able! Warmly, Tara (team member)
January 31, 2021
Hi Tara, I know that this was posted a while back! I currently work as a pharmacy dispenser, which works okay for me but I find that it is a little too stressful for me. Luckily, as I am living with my mom at the minute I am able to work part time which definitely helps me but I am actively searching for a new job.
I hear from others with narcolepsy that a job where you have to be on the go and on your feet helps them with staying alert. What job do you currently do? Have you had any luck with finding a new one?
February 13, 2021
Hi Bella, I currently am just moderating and contributing for Health Union on this page and moderating for the migraine page as well. It has been a nice stay at home job for me for right now. Working in stressful situations is not good for me and with the pandemic, it seems as if every job is pretty stressful right now. Thank you for your reply! Warmly, Tara (team member)
October 20, 2020
@lynne-murphy Thank you so much for reading my story and reaching out. Right now I actually work in an elementary school. With the pandemic right now things are pretty crazy. I do not get the support that I should be getting, so I am in the process of something pretty messy. What I have started to notice, is high levels of stress take a huge toll on my narcolepsy and makes my symptoms worse. It is kind of like a domino affect. I am on Xyrem for my night medication and stress is one of two things that causes Xyrem not to work as well. If my medication is not working like it should, then I am not sleeping like I should. If I am not sleeping like I should, then my immune system is compromised. It is just a continuous cycle unfortunately. I also am a volunteer EMT and I love doing that. I think my ultimate career goal, would be finding something I can do full time as an advocate for narcolepsy. It is truly a passion of mine. I do not want anyone else going as long as I did to get a diagnosis!