Narcolepsy and Stress
Do you find that stress increases your daytime sleepiness or other symptoms?
Stress causes me not to sleep and no sleep makes my EDS worse and turns me into an emotional basketcase!!
my Dr says I have it but I don't have a diagnosis for it out of fear that I will lose my CDL and nursing license. I have to take 300mgs modafinil and 150 mgs of sunosi each day in order to stay awake. I totally get that! Stress and lack of sleep are such a vicious cycle, and it hits so hard when you have EDS. It’s like everything just spirals, and suddenly, you're emotionally all over the place. You’re not alone in feeling that way. Hang in there! Take care, Iris (Team member)
I totally know what you mean, I've definitely had less emotional energy the last year or so. Sorry to hear you've been struggling more this past year. I hope things have been getting better since your post. Best Wishes! -Aron (Team Member) They will-the grass is always greener...
Unfortunetly, Narcolepsy can create brain lesions I don't know if there is a diect connetion between the disease and stress; however,
There are a number of researchers looking into lesions and if there are related stress connections. Cortisol and inflammation was a interest to the researchers. I like your post and interest on the subject. I am glad your clear. A good MRI is always a great thing! The research I was speaking of was two different discussions I had with two neurosurgeons.. The surgeon's are associated with Hospitals that do research in neurology. If you like I would be willing to point you in there direction if would help you in anyway.
Getting to my course at college has been very stressful despite my carer being super patient with me. Lateness to classes and non attendance have increased weekly recently. I'm really struggling, but I'm not going to give up. Thanks for understanding hearts.
(TeamMember)Wow do I know that routine. I was always known for being late or not being somewhere I was supposed to be. With medication for my narcolepsy it was a game changer. I finally wasn't missing things as much. Nor late for everything. I occasionally still will have days I cannot function even with medication. Now however it seems as if there is some sense of normalcy in life . Narcolepsy is wicked that's for sure. Never give up or give in. Stand tall give it you all! Reach out to all of us that are fighting the same! I so glad your medication is bringing some normality back. It crazy to think you could have been labelled as the one that's always late. That was me too. Only later to find it was 80% narcolepsy not you. You never give up too. Keep flighting! Your not alone. Kerly team member
