Meet Our Advocate - Rebecca Noyes
At Narcolepsy.Sleep-Disorders.net, we are thankful for our amazing advocates who share their experiences of living with narcolepsy. In our advocate spotlight interview series, we get to know our advocates better and find out why spreading awareness of narcolepsy is so important to them.
What is one thing you would like to share with the community?
Being part of support groups and communities for narcolepsy has been such a huge help to me in my own journey as I no longer felt alone. It’s so helpful to know that others in this community have a much greater chance of understanding where you’re coming from or experiencing the same things as you. No matter what stage in your journey you’re at, just keep going.
What does advocacy mean to you?
When I think of advocacy, I think of support. Being an advocate means that you are supporting the research, education, and community of those with narcolepsy.
What do you wish someone had told you when you were first diagnosed with narcolepsy?
If you think it’s scary getting the diagnosis, it isn’t. It was the best thing that I’ve ever discovered as I now have an answer. When you have an answer, you now have a direction for further learning.
What brings you the most joy (especially when you’re feeling down)?
My dog. He is able to match my energy and is always up for either a nap or a hike! I don’t know many other people that can be so flexible. When I want to binge-watch Netflix, he is right there next to me. When I find the energy to hike at the park, he finds the energy. If I’m suffering from insomnia, he will stay up with me until I fall asleep.
Where do you find support?
Honestly, my biggest support aside from my family is support groups for those with narcolepsy.
What is the last show you watched that you enjoyed?
Grey’s Anatomy. I love any kind of medical drama.
What is one meal you could eat for the rest of your life?
What is your favorite quote or saying?
"You only regret what you don’t do, not what you did."
Do you relate to Rebecca's narcolepsy experience? Say hello to Rebecca in the comments below!
Do you feel that your doctor understands narcolepsy?