Your Year in Review With Narcolepsy

Last updated: January 2023

As we all prepare to ring in the New Year of 2023, it's the perfect time to connect with each other as a community to share the trials and triumphs that shaped and defined 2022.

Throughout the year, our amazing community members have made their voices heard on so many important issues and experiences common in the narcolepsy community. These have included your suggestions for improving healthcare providers' treatment of narcolepsy, tips on how to help people experiencing cataplexy, your earliest experiences of narcolepsy, and the most frustrating symptoms of narcolepsy.

We are filled with gratitude for your vulnerability, compassion, and willingness to support each other and share information and resources on managing and living with narcolepsy. We thank our Facebook community as well as our on-site community (and those who make up both!) for an incredible year of sharing your stories, finding community in our forums and comment sections, and building lasting, supportive relationships with each other. We also thank our Community Health Leaders for sharing their stories and invaluable perspectives with the community this year.

No matter where you may be in your diagnosis journey, no matter where you are in the world, we are here for you at Use the following short quiz to help reflect on your year and the upcoming one, and share an experience on any of your answers in the comments below!

Community Poll

Were you diagnosed with narcolepsy this year?

Community Poll

Did you feel you had adequate support in your narcolepsy journey this year?

Community Poll

How often this year did your narcolepsy symptoms impact your daily activities?

Community Poll

Would you like to be able to connect with more people living with narcolepsy in 2023?

Community Poll

As you reflect on 2022, how do you feel about the prospect of living with narcolepsy in 2023?

Community Poll

What would you like to see more of from our site in 2023? (Select all that apply.)

Have you experienced any triumphs, achievements, life events, or happy accidents this year that colored your life with narcolepsy? No victory is too small! Share a story with us via our submission form.

Is there anything not listed in the poll above that you'd like to see more of from in 2023? Share with us in the comment section below!

And on behalf of, Happy New Year.

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Community Poll

Did you know you can read advice and stories from other community members in our new Community Hub?