Stories

Currently, I am washing my medication out of my system, in order to participate in a clinical trial for a new medication that is believed to be a potential cure...

I have type 2 Narcolepsy. Though I don't have all of the symptoms of N1, the sleepiness as well as the recurring fatigue, are the same. It seems to me...

The journey to receiving a confirmed diagnosis of Narcolepsy 1, was a long and extremely frustrating one, to say the least. Initially, when I was having symptoms I would chalk...

I was diagnosed with Narcolepsy this past February. I was stunned but not afraid. It never occurred to me there was something ‘wrong’ with all the sleeping I was doing...

Want to share your own narcolepsy story? Submit here. I wrote this as a Facebook status a few months ago when I was having a really rough night. I felt...

I was a surgeon. I thought I knew a little bit about sleep. I guess, being a specialist, I should have known that the discoveries and advancements in sleep medicine...

Narcolepsy to me is the devil. I hate it so much. It has ruined my entire life and I don’t know what I’m going to do. I find myself lost...

I'm sorry brain our immune system attacks us, I too wish there were a cure to free the hypothalamus. Invisible, yet so real, always causing me to question what I...

So, I titled this post '7 strikes' because that's how many I seemingly have against me. We all have things, or strikes, about us that make it challenging to cope...

Living with narcolepsy has not been easy. When I was much younger, I always imagined how other people work without getting tired easily. They don’t fall asleep like I do...

Dealing with narcolepsy is difficult enough, but being a senior citizen with narcolepsy, or any rare disease, is unbelievable! I’ve taken amphetamines for many years because they were the only...

I swear it is like clockwork every day at around 2:30 PM, the intense fatigue starts to take over. I am at work sitting at my desk, I feel my...

For anyone following this thread who may be looking for support, these resources may be useful. Howdy! My name is Ron, and I have had narcolepsy for as long as...

I was 26 with one daughter, and 2 more yet to come. Lived in rural Oregon, 68 miles to a doctor and hospital. My wife didn't drive. Besides making a...

I was diagnosed with narcolepsy in October of 1998. At 41 years old, I was driving from WI to IL every day to work and was falling asleep driving, mostly...

I have had narcolepsy type 1 for more than 8 years. I am at a loss for what to do. I lost my job because of folks not understanding it...

For this #WorldNarcolepsyDay, I wrote a bit about what narcolepsy has been for me in an effort to raise awareness. Narcolepsy is more than just being “sleepy” all the time...

I’m starting to believe that I’m going to be alone forever at this point. No one lasts too long in my life because I’m “unreliable" or "unavailable when they need...

Sometimes I do ok. I can focus alright, and get things done. But other times, it constantly feels like when you wake up, and can't quite remember your dream. I'll...

I use to have a really good memory. Now I have short-term memory loss. So much brain fog. I get confused easily and my thoughts get jumbled. Especially when I’m...