Stories

Narcolepsy is definitely the biggest challenge in my life. I’m 28 years old and I’m still struggling to understand my own body. It always feels to be rapidly changing in...

As a child I always wanted to sleep more than I was allowed, 18yrs I had my Son I drank ice tea like water I would be in bed by...

I have learned to accept that most people will never understand what it’s like to live with Narcolepsy. Throughout the years I have struggled to understand myself and what I...

In 2018 I had a stomach bleed that shut down one kidney, brain swelling, septic and in a coma. All of the Drs kept telling my family they didn't know...

Hi I’m Rachel Nesmith from DALLAS, TX. I’m making the World a better place “One Melody at a Time”. Why do I feel so confident that music can change public...

Hi everyone, I figured I would share my story to shed some light on how sleep apnea caused me to have symptoms of narcolepsy. I struggled with severe hypersomnia for...

I hope this letter finds you well. I am reaching out to you with a heartfelt plea on behalf of my daughter to find a a support group and a...

I have come a long way in life; I’ve realized that I have been my own biggest critic and that hasn’t been good for my mental health. I was angry...

Currently, I am washing my medication out of my system, in order to participate in a clinical trial for a new medication that is believed to be a potential cure...

I have type 2 Narcolepsy. Though I don't have all of the symptoms of N1, the sleepiness as well as the recurring fatigue, are the same. It seems to me...

The journey to receiving a confirmed diagnosis of Narcolepsy 1, was a long and extremely frustrating one, to say the least. Initially, when I was having symptoms I would chalk...

I was diagnosed with Narcolepsy this past February. I was stunned but not afraid. It never occurred to me there was something ‘wrong’ with all the sleeping I was doing...

Want to share your own narcolepsy story? Submit here. I wrote this as a Facebook status a few months ago when I was having a really rough night. I felt...

I was a surgeon. I thought I knew a little bit about sleep. I guess, being a specialist, I should have known that the discoveries and advancements in sleep medicine...

Narcolepsy to me is the devil. I hate it so much. It has ruined my entire life and I don’t know what I’m going to do. I find myself lost...

I'm sorry brain our immune system attacks us, I too wish there were a cure to free the hypothalamus. Invisible, yet so real, always causing me to question what I...

So, I titled this post '7 strikes' because that's how many I seemingly have against me. We all have things, or strikes, about us that make it challenging to cope...

Living with narcolepsy has not been easy. When I was much younger, I always imagined how other people work without getting tired easily. They don’t fall asleep like I do...

Dealing with narcolepsy is difficult enough, but being a senior citizen with narcolepsy, or any rare disease, is unbelievable! I’ve taken amphetamines for many years because they were the only...

I swear it is like clockwork every day at around 2:30 PM, the intense fatigue starts to take over. I am at work sitting at my desk, I feel my...