Finding SupportI was diagnosed with narcolepsy (my new doctor calls it hypersomnia) during my quest to discover a reason for my muscle problems...reactionscomments
Lazy and Not SmartIt took many years to get diagnosed with narcolepsy. I was told that I was lazy and was not as smart as...reactions1comment
Unusual Cataplexy Trigger Leaves Me UnderwaterNote: This story is from Amy in the United Kingdom. She writes about her experience with the lack of support she's received...reactionscomments
When Sleep Steals Time: Being a Part-Time HumanI often feel like a part-time human while everyone around me gets to live as full-time humans. People with narcolepsy talk about...reactions1comment
I Have Narcolepsy: I'm Done ExplainingThere is a clear line that divides my life: before my Narcolepsy diagnosis and after it. And honestly, sometimes I don’t even...reactions2comments
Navigating Cataplexy, Grief, and a Broken SystemHi 😊, I'm Amy from the UK (United Kingdom), and my story has been ongoing for the past 7 years now. Unfortunately...reactions2comments
The mask we wear with narcolepsyNarcolepsy is definitely the biggest challenge in my life. I’m 28 years old and I’m still struggling to understand my own body...reactionscomments
Always TiredAs a child I always wanted to sleep more than I was allowed, 18yrs I had my Son I drank ice tea...reactionscomments
Misunderstood….to say the least.I have learned to accept that most people will never understand what it’s like to live with Narcolepsy. Throughout the years I...reactionscomments
My last 3 years of battle to only be diagnosed with narcolepsy with caterplexy.In 2018 I had a stomach bleed that shut down one kidney, brain swelling, septic and in a coma. All of the...reactionscomments
Sleepy American SuperheroHi I’m Rachel Nesmith from DALLAS, TX. I’m making the World a better place “One Melody at a Time”. Why do I...reactionscomments
Sleep Apnea and Narcoleptic-like EpisodesHi everyone, I figured I would share my story to shed some light on how sleep apnea caused me to have symptoms...reactionscomments
Point me in the right directionI hope this letter finds you well. I am reaching out to you with a heartfelt plea on behalf of my daughter...reactionscomments
The journey beneath her heavy feetI have come a long way in life; I’ve realized that I have been my own biggest critic and that hasn’t been...reactionscomments
I Have Found My PeopleCurrently, I am washing my medication out of my system, in order to participate in a clinical trial for a new medication...reactions1comment
A Narcoleptic's TaleI have type 2 Narcolepsy. Though I don't have all of the symptoms of N1, the sleepiness as well as the recurring...reactions5comments
My Personal Journey to Self-AdvocacyThe journey to receiving a confirmed diagnosis of Narcolepsy 1, was a long and extremely frustrating one, to say the least. Initially...reactions2comments
An Older Perspective On a New DiagnosisI was diagnosed with Narcolepsy this past February. I was stunned but not afraid. It never occurred to me there was something...reactions4comments
What Is Narcolepsy? — A Midnight RantWant to share your own narcolepsy story? Submit here. I wrote this as a Facebook status a few months ago when I...reactions4comments
Can't Sleep and Can't Stay AwakeI was a surgeon. I thought I knew a little bit about sleep. I guess, being a specialist, I should have known...reactions8comments
