DoctorsAfter finally receiving the correct diagnosis, I had a great doctor for many years, he actually listened to me. Then, I retired...reactionscomments
Living Outside the Mean - The Complexity of Identifying Rare DisordersI was diagnosed with idiopathic hypersomnia and probable narcolepsy when I was in my 20's. Then I was hit by a car...reactionscomments
What Nobody Talks About: The Severe Social Impact of NarcolepsyWhen we speak of narcolepsy, we speak of symptoms. We speak of being unable to engage in passive activities without falling asleep...reactions7comments
Digging Through An Empty ChestI live in a country where sleep specialists are rare. I don't expect Xyrem or Xywav to make it here any time...reactions1comment
We’re Not Alone (Although It Feels As If We Are)Reading everyone’s stories here has honestly meant more to me than I can explain. It reminds me that I’m not alone in...reactions1comment
Navigating Cataplexy, Grief, and a Broken SystemHi 😊, I'm Amy from the UK (United Kingdom), and my story has been ongoing for the past 7 years now. Unfortunately...reactions2comments
I Have Narcolepsy: I'm Done ExplainingThere is a clear line that divides my life: before my Narcolepsy diagnosis and after it. And honestly, sometimes I don’t even...reactions2comments
When Sleep Steals Time: Being a Part-Time HumanI often feel like a part-time human while everyone around me gets to live as full-time humans. People with narcolepsy talk about...reactions5comments
Unusual Cataplexy Trigger Leaves Me UnderwaterNote: This story is from Amy in the United Kingdom. She writes about her experience with the lack of support she's received...reactionscomments
The Beginning of NarcolepsyI'm 76, it started when I was in 4th grade, chasing my friend home, suddenly I thought there was a huge bumblebee...reactions5comments
I've Fallen and Can't Wake Up3 years ago I noticed I was sleeping a lot more than usual. My girlfriend asked me if I wás on drugs...reactions1comment
Finding SupportI was diagnosed with narcolepsy (my new doctor calls it hypersomnia) during my quest to discover a reason for my muscle problems...reactions1comment
Lazy and Not SmartIt took many years to get diagnosed with narcolepsy. I was told that I was lazy and was not as smart as...reactions1comment
The mask we wear with narcolepsyNarcolepsy is definitely the biggest challenge in my life. I’m 28 years old and I’m still struggling to understand my own body...reactions1comment
Always TiredAs a child I always wanted to sleep more than I was allowed, 18yrs I had my Son I drank ice tea...reactionscomments
Misunderstood….to say the least.I have learned to accept that most people will never understand what it’s like to live with Narcolepsy. Throughout the years I...reactionscomments
My last 3 years of battle to only be diagnosed with narcolepsy with caterplexy.In 2018 I had a stomach bleed that shut down one kidney, brain swelling, septic and in a coma. All of the...reactionscomments
Sleepy American SuperheroHi I’m Rachel Nesmith from DALLAS, TX. I’m making the World a better place “One Melody at a Time”. Why do I...reactionscomments
Sleep Apnea and Narcoleptic-like EpisodesHi everyone, I figured I would share my story to shed some light on how sleep apnea caused me to have symptoms...reactionscomments
Point me in the right directionI hope this letter finds you well. I am reaching out to you with a heartfelt plea on behalf of my daughter...reactionscomments
