My Personal Journey to Self-AdvocacyThe journey to receiving a confirmed diagnosis of Narcolepsy 1, was a long and extremely frustrating one, to say the least. Initially, when I was having symptoms I would chalk... By lerieturner6 min readBookmark for later Reactions 0 reactions Comments0 comments
An Older Perspective On a New DiagnosisWant to share your own narcolepsy story with our community? Submit one here. I was diagnosed with Narcolepsy this past February. I was stunned but not afraid. It never occurred... By CommunityMember7741 min readBookmark for later Reactions 0 reactions Comments3 comments
What Is Narcolepsy? — A Midnight RantWant to share your own narcolepsy story? Submit here. I wrote this as a Facebook status a few months ago when I was having a really rough night. I felt... By Gabrielle Keith1 min readBookmark for later Reactions 0 reactions Comments0 comments
Can't Sleep and Can't Stay AwakeI was a surgeon. I thought I knew a little bit about sleep. I guess, being a specialist, I should have known that the discoveries and advancements in sleep medicine... By Flybum44 min readBookmark for later Reactions 0 reactions Comments6 comments
It’s Me and I Hate ItNarcolepsy to me is the devil. I hate it so much. It has ruined my entire life and I don’t know what I’m going to do. I find myself lost... By Plumcrazyxoxo1 min readBookmark for later Reactions 0 reactions Comments1 comments
Narcolepsy PoemI'm sorry brain our immune system attacks us, I too wish there were a cure to free the hypothalamus. Invisible, yet so real, always causing me to question what I... By Lef.10281 min readBookmark for later Reactions 0 reactions Comments2 comments
7 StrikesSo, I titled this post '7 strikes' because that's how many I seemingly have against me. We all have things, or strikes, about us that make it challenging to cope... By Lef.10282 min readBookmark for later Reactions 0 reactions Comments0 comments
How I Am Living With NarcolepsyLiving with narcolepsy has not been easy. When I was much younger, I always imagined how other people work without getting tired easily. They don’t fall asleep like I do... By Charity1 min readBookmark for later Reactions 0 reactions Comments1 comments
Narcolepsy and MedicareDealing with narcolepsy is difficult enough, but being a senior citizen with narcolepsy, or any rare disease, is unbelievable! I’ve taken amphetamines for many years because they were the only... By trula2 min readBookmark for later Reactions 0 reactions Comments0 comments
Vicious CycleI swear it is like clockwork every day at around 2:30 PM, the intense fatigue starts to take over. I am at work sitting at my desk, I feel my... By narcolepticnik1 min readBookmark for later Reactions 0 reactions Comments2 comments
Blessed but Feel Cursed!For anyone following this thread who may be looking for support, these resources may be useful. Howdy! My name is Ron, and I have had narcolepsy for as long as... By Lef.10282 min readBookmark for later Reactions 0 reactions Comments5 comments
55 Years With Type 1 NarcolepsyI was 26 with one daughter, and 2 more yet to come. Lived in rural Oregon, 68 miles to a doctor and hospital. My wife didn't drive. Besides making a... By tedminahen2 min readBookmark for later Reactions 0 reactions Comments4 comments
A Long Road to NowhereI was diagnosed with narcolepsy in October of 1998. At 41 years old, I was driving from WI to IL every day to work and was falling asleep driving, mostly... By Joanie3 min readBookmark for later Reactions 0 reactions Comments4 comments
Unloading...I have had narcolepsy type 1 for more than 8 years. I am at a loss for what to do. I lost my job because of folks not understanding it... By Catnap1 min readBookmark for later Reactions 0 reactions Comments3 comments
More Than SleepyFor this #WorldNarcolepsyDay, I wrote a bit about what narcolepsy has been for me in an effort to raise awareness. Narcolepsy is more than just being “sleepy” all the time... By srz20001 min readBookmark for later Reactions 0 reactions Comments1 comments
This Sucks!I’m starting to believe that I’m going to be alone forever at this point. No one lasts too long in my life because I’m “unreliable" or "unavailable when they need... By Mariahann1 min readBookmark for later Reactions 0 reactions Comments5 comments
It's Like Waking Up From a DreamSometimes I do ok. I can focus alright, and get things done. But other times, it constantly feels like when you wake up, and can't quite remember your dream. I'll... By Brookidee1 min readBookmark for later Reactions 0 reactions Comments2 comments
Narcolepsy has made me an airhead !!!I use to have a really good memory. Now I have short-term memory loss. So much brain fog. I get confused easily and my thoughts get jumbled. Especially when I’m... By Sunflowers13251 min readBookmark for later Reactions 0 reactions Comments10 comments
A Fantastically Terrifying and Sleepy LifeThe balance between fair and being sleepy I remember almost every nightmare. I have had them since I was 4-5 years old, I could write a book of them. I... By Alon2 min readBookmark for later Reactions 0 reactions Comments5 comments
"All You Do is Sleep"As I sit here and try to put my life into words, I realize that I knew all along something was wrong with me. I was always tired but I... By narcolepticnik3 min readBookmark for later Reactions 0 reactions Comments7 comments
