Why Is Narcolepsy So Isolating?It is estimated that between 135,000 and 200,000 people in the U.S. suffer from narcolepsy. Narcolepsy is a relatively rare sleep disorder in which people suffer from excessive sleepiness, fragmented...Reactions0reactionsComments0 comments
The Importance of Awareness and AdvocacyWhen I first received my diagnosis, I had so many thoughts swirling in my head: “How will this affect me?”, “What will my treatment be?”, and “When will I start...Reactions0reactionsComments0 comments
Raising Awareness: My Relationship With SleepA healthy relationship with sleep is important to our health and overall well-being. But what happens when that relationship is fractured? This week, we will be raising awareness about sleep...Reactions0reactionsComments0 comments
Ways to Raise Awareness About Your Sleep DisorderThe National Sleep Foundation’s Sleep Awareness Week® is celebrated in March each year. As you likely know, many people don’t know much about sleep disorders like narcolepsy, restless legs syndrome...Reactions0reactionsComments0 comments
Narcolepsy: A Rare and Invisible ConditionNarcolepsy is a relatively rare condition compared to most. Invisible illnesses and hidden disabilities are gaining a lot more awareness. This is thanks to campaigns, more people being open, and...Reactions0reactionsComments0 comments
Narcolepsy Friends Are BetterLast week I had the pleasure of meeting one of my friends who has narcolepsy in person for the first time. This friend visited me in my new city, and...Reactions0reactionsComments0 comments
I Drove Cross-Country With My Narcolepsy Service Dog: Here’s How I Did ItI recently made a big move, and I decided that I needed to do the drive there myself for a variety of personal reasons. With my narcolepsy service dog, duffel...Reactions0reactionsComments0 comments
Is It Me or Is It Narcolepsy?I often wonder if narcolepsy is to blame for my lack of focus or if I am. We know that narcolepsy has an impact on behaviour and personality, but to...Reactions0reactionsComments10 comments
Terms and Conditions for the World Narcolepsy Day GiveawayOfficial Rules, Terms and Conditions for the World Narcolepsy Day Casper Giveaway NO PURCHASE NECESSARY TO ENTER OR WIN. A PURCHASE DOES NOT INCREASE YOUR CHANCES OF WINNING. VOID WHERE...Reactions0reactionsComments0 comments
I Ran Out of My Medicine in a Foreign CountryOne of my favorite things to do is travel. My first international trip was to Paris, France in 2017, which started my craving for foreign countries. After Paris, my international...Reactions0reactionsComments0 comments
Narcolepsy Makes Housework HardI’ve always been the kind of person that kept their personal space clean. Even as a kid, it was a ritual for me to make my bed every morning. To...Reactions0reactionsComments5 comments
My Condition, My Choice!“You look tired, is everything ok?” This is a question that most of us living with narcolepsy are probably tired of hearing - especially in the workplace. Recently I was...Reactions0reactionsComments5 comments
Invisibility: Blessing or Curse?There are many illnesses that are fairly visually obvious. Many chronic conditions may be difficult — or, at times, even impossible — to hide. Narcolepsy is not one of them...Reactions0reactionsComments0 comments
Worries While Having Narcolepsy Narcolepsy is a rare condition affecting 1 in 2,000 people in the general population. Due to its rarity, I am not flabbergasted when an individual doesn't know much about narcolepsy...Reactions0reactionsComments0 comments
SSI and Medicaid: Moving to a Place Based on Healthcare“What do you mean I’m not eligible for Medicare?” I groan into the phone. “I’m on Social Security, aren’t I?” At this point the Social Security agent kindly explained to...Reactions0reactionsComments0 comments
Brain Fog on a Sunny Day: How I Stay Productive on Difficult DaysWith a chronic illness like narcolepsy, some days I am more capable than others. Other days I feel like a mountaintop has crashed over my head, preventing me from getting...Reactions0reactionsComments0 comments
Working From Home: The Good, the Bad, and the UglyI am sure so many of us have experienced the ups and downs of working from home over the last 2 years. I remember when COVID-19 lockdowns first happened in...Reactions0reactionsComments0 comments
Analyzing the Benefits and Risks of Stimulant UseMost people living with narcolepsy are well acquainted with this word: stimulants. Known under countless other names (amphetamines, methylphenidate, Ritalin, modafinil, Adderall, and more), every individual’s reaction is unpredictable, and...Reactions0reactionsComments4 comments
6 Tips for Staying on Top of TreatmentLiving with a long-term health condition requires us to stay on top of everything: doctor’s appointments, new symptoms, insurance, and, of course, managing treatment – all while taking care of...Reactions0reactionsComments0 comments
Day in the Life of a Flight Attendant With NarcolepsyI became a flight attendant in May 2017. Initially, I didn't care to be a flight attendant. I was going to practice my interviewing skills. Once I got the acceptance...Reactions0reactionsComments8 comments