Living

This giveaway is now closed. Thank you for your interest! September 22 is World Narcolepsy Day! World Narcolepsy Day is a day dedicated to raising awareness about narcolepsy globally. This...

This month I celebrate my birthday, but not only do I celebrate the day my mother presented me to the world, it also brings me to a new level of...

I would like to begin by saying I love my husband! He is my best friend and soulmate. We hardly ever squabble, and he is very understanding of my narcolepsy...

Narcolepsy is a condition for which there is no cure. This means that those of us who have it will live with it for the rest of our lives. This...

This article is the second of a series. Be sure to check out Part 1, Finding the Right Doctor: What Poor Care Looks Like. By this point, I had been...

Brittany Runs a Marathon (available for streaming on Amazon Prime Video) is a tale of the arduous journey of one woman in making healthy lifestyle choices that ultimately leave her...

A forest of greens and browns surrounds me. Dirt crunches beneath my boots. My German Shepherd service dog is happily pulling me along the trail. I am passing a trail...

I’m sure a lot of women will agree that we don’t always get fair treatment from doctors. Many times our concerns are brushed aside or flat out denied. We are...

You know those days where you feel like you are being tested by the universe? Anything and everything that could go wrong seems to be going wrong, and you are...

Automatic behaviour is when someone experiences a temporary brief sleep episode during an activity (e.g., eating and writing) and automatically continues with the activity for a few seconds or minutes...

Before starting working as an advocate, I had spent more than 2 years unemployed. This was due to a combination of factors, but it mostly boiled down to ill health...

The Managing Treatment and Medication Survey is now closed. Thank you for your interest! Treatment is a big part of managing a chronic (long-term) health condition like narcolepsy. Often, we...

Narcolepsy has deep and lasting consequences for daily living. Many situations, whether at work, home, or school, are made more challenging by narcolepsy symptoms. To better understand the impact of...

What is acceptance? The Oxford Learner's Dictionary describes it as “The quality of being willing to accept an unpleasant or difficult situation.” Acceptance is essentially a common and unremarkable word...

Content Note: This article mentions suicide ideation. If you or a loved one are experiencing suicidal thoughts, there are resources available for support including the National Suicide Prevention Lifeline (1-800-273-8255)...

The narcolepsy community has long used this phrase. This is because, unfortunately, a lot of people still think of sleepiness this way. So many of us are shamed for our...

“Dangerous” is a word most would probably not associate with narcolepsy. It’s just a sleep disorder, right? What could possibly be dangerous about a sleep disorder? Although I would prefer...

It is tough being an outdoorsy person with a disability. This probably doesn’t come as a surprise. A disability is defined as a condition that impacts one or more life...

I recently went on an international trip to Sweden to visit my brother. If you haven’t already, you can read my article about traveling with narcolepsy. Thankfully, I managed to...

I attended my first narcolepsy support group meeting in 2020. I was stunned to see the vibrancy and variety in people who attended. I felt incredibly validated while listening to...