At What Age Were You Diagnosed With Narcolepsy?
19
So young! When were you diagnosed with MS? Was there ever a time when narcolepsy treatment made a big difference? Thinking of you. - Lori (Team Member)
47
I was officially diagnosed in August of 2014, only a week or two after I turned 18. But I'd been having issues with sleep since I was at least 12.
The original treatment plan they had me on was a low dose of Adderall, which worked for a bit until they tried putting me on a dose (45mg in total) that caused significant heart palpitations. Now I'm on a lower dose of Adderall (35 was the max we could do without palpitations causing issues), as well as on Armodafinil and Waxix. I think this combo would be helpful in managing my narcolepsy pretty well if it weren't for other health issues I've begun having, which have caused me to continue to struggle with my narcolepsy despite my treatment plan. Good days and bad days. Hi
. Having comordibities with narcolepsy can be tough. I hope you eventually settle on a treatment plan for all your conditions that allows you to have many more good days than bad. Warmly, Lori (Team Member)
Age 66
