At What Age Were You Diagnosed With Narcolepsy?
I was in college-19
Hi
. I can see why your symptoms might make college difficult and lead to a diagnosis. Did you get much support from your professors? Were you able to finish? Wishing you the best. - Lori (Team Member)
never diagnosed ,figured it out in my early 20's after some cataplexey attacks now in my early 80's
Hi
. I see you're new here. Welcome! That is a long journey. Have you seen many changes in narcolepsy treatment or awareness since you were diagnosed? Warm wishes. - Lori (Team Member)
Diagnosed at 37, had it since I was 9 or 10. Took years to finally get a doctor that sent me to a sleep specialist for testing. Many other diagnoses, mostly psychological ones. 62 now and very grateful it was caught when it was.
Age 43. I'm now 94. Got a referral after I fell asleep in my doctor's office. He had treated me for all things I didn't have but this scared him. The neurologist knew instantly what it was.
Thank goodness you experienced a sleep attack in front of your doctor,
. Who knows how long you might have gone without a diagnosis if that hadn't happened. Has treatment helped? Have you found any positive changes in treatment over the decades? Thanks for joining the conversation Best wishes. - Lori (Team Member)
