Hi . Thanks for joining the conversation. Did you experience symptoms for long before you were diagnosed? Best wishes. - Lori (Team Member)
Fish_out_of_waterMember
I was diagnosed at age 22. And it’s never been well managed. I’m on Vyvanse and I’m still tired all the time.
Lori.FosterCommunity Admin
I wish you had more energy. Do you have confidence in your sleep specialist? If not, have you considered switching to someone new? - Lori (Team Member)
Liz_from_LongIslandMember
Symptoms seemed to start immeadiately following graduation from college. Took 2 years to finally get the diagnosis in 2006. I must have been 24.
Lori.FosterCommunity Admin
I'm glad you were at least able to get through college before the sympoms became significant. How are you doing now? Is your narcolepsy well managed? Warmly, Lori (Team Member)
CommunityMemberb17c86Member
diagnosed at 17, found out about diagnosis at 34...
Lori.FosterCommunity Admin
Hi . Welcome to the community! Did someone withhold your diagnosis from you? If so, that seems like an awful thing to do. I hope the intentions were good even if the decision might have been misguided. Best of all wishes. - Lori (Team Member)