AlySon.LaLa.Land Member
35
Alottabit Member
Hi I am new to the forum and I am very excited to be here. As the day goes by I will tell you some about my experiences too. It just might come in more than one post because I am also taking care of my elderly mother. If you have any questions for me, please ask and I will be happy to answer them. Oh yeah and thanks for sharing if I forget to say that later. š
Allison Echols Community Admin
Hi
Lyaneris Member
16, had struggled since 12.
Lyaneris Member
I'm type 2 with nearly no other symptoms. Apart from eds, I only have automatic behaviours when I'm woken up. I don't get sleep attacks very often and if I do, I can identify them very early (20+ min before).
In hindsight, coming home, eating, sleeping doesn't sound like normal energy levels. But I was only told that I was being lazy and convinced myself I wasn't a morning person and that being around people all day drained my energy this much.
Ty for asking and reading 😀
Iris Vasconcelos Moderator & Contributor
I do have narcolepsy type 1 but I can definitely relate to your experience with being told that you were lazy etc...I think a lot of us get that unfair reputation a lot...sometimes even after we're diagnosed too unfortunately. 🙁
Thanks soo much for sharing!! Hope things are better now!
Take care, Iris x
Ra86 Member
It started six or more years ago. Got diagnosed this year, I'm 36. Was way tired though my whole life though.