Does everyone with narcolepsy eventually stop drinking alcohol?
I've read where xyrem is also used to treat alcohol addiction. I'm thinking that's why anyone that takes it doesn't seem to want to drink anymore. I was on xyrem but have been on Xywav since ot was approved and since taking them for the last 7 yrs I have no desire to drink at all.
That's interesting,
. I hadn't heard that. Maybe it does supress the urge. Warm wishes. - Lori (Team Member)
I don't drink at all! Not in YEARS.
I still drink socially! but only on days I dont take my stims. I dont know if I will if I start Xyrem or the likes though 🙁
Its the weirdest thing. I use to drink alcohol socially. I was on xyrem for several months but it didn't really help my daytime sleepiness so I stopped taking it. During the time I was taking xyrem I didn't drink alcohol out of concern if it would just make me feel worse but after quitting xyrem I had not drank any alcohol to this day And I quit xyrem 10 years ago. Its a hard feeling to describe. I'm not oppose to it, I don't crave it and in social settings I just simply can't bring myself to drink it. Its very clear to me that I did not feel this way UNTIL I started taking xyrem and has lasted way after I stopped taking it. It doesn't bother me that I can't drink socially anymore, I now wonder since others have experienced it, maybe it can be used to treat alcoholism.
your description is EXACTLY what I noticed when it comes to drinking alcohol. Its the weirdest thing. That is really interesting,
. It makes you wonder whether it might be useful in treating addiction. Wishing you the best. - Lori (Team Member)
