Vicki1940 Member
Approximately 50 years. I'm 82 years old.
Briar Rose Member
32 years. It began after I had mono, when I was 17, and I was diagnosed last year, when I was 49.
Allison Echols Community Admin
Wow
Briar Rose Member
It's almost been a year since my diagnosis and I still doubt if it's actually Narcolepsy. I'm so convinced by a whole lifetime of conditioning that it's because I'm faulty somehow. The tests clearly point to it though. I sometimes reread the diagnosis notes to remind myself that it's a whole different outlook now.
What about yourself? How has life changed after getting a real diagnosis?
Kandice Member
Iris Vasconcelos Moderator & Contributor
CommunityMember67 Member
I can trace onset of symptoms back as far as 17years... Average time to diagnosis is 8 to 15years.... far too long!!
Iris Vasconcelos Moderator & Contributor