The Summer Heat
Hey!
I was having a conversation with a friend with narcolepsy recently, and we were discussing how we both tend to struggle when the summer months get super hot and humid. Are there others out there who also notice their symptoms worsen during the summer, specifically if you have to be outside in the weather?
Not so much the sleepiness as my cataplexy. Heat will set off those spells in an instant.
Hi
. How you found ways to cope and stay safe? It's been such a hot summer everywhere this year. I hope you have been able to manage it. Thinking of you. - Lori (Team Member)
When it’s humid I feel like I’m coming out of my skin and am very lethargic. I can’t tolerate being outside for more than an hour before I get symptoms of heat exhaustion. On the rare days in Florida that have low heat or humidity I feel like “oh, I’m human and I fit in my body!” Who knew?
I hear the humidity is especially bad in Florida this week,
. I hope you have air conditioning at home, at work and in your vehicle and that you get some relief soon. Best of all wishes. - Lori (Team Member)
Every year since I developed narcolepsy I’ve tried various cooling products so I can still be outside with my horses in the summers. This year I finally struck gold when I purchased the FlexiFreeze Cooling Ice Vest (with the additional ice inserts). Each set of ice inserts last about three hours. Having up to six hours of being outdoors each day has significantly improved my outlook on life!
Thanks for sharing what helps,
. I would imagine it is especially important that you don't have an episode while tending to your horses. Wishing you the best. - Lori (Team Member) Thank you so much for sharing this. If it get up on 30 celisus or above I will definitely get these. This is what every person with narcolepsy need in London last year. There no air conditioner in homes it was 35 degrees. You know when your so hot that your brain stop functioning. It was like that. You can't think properly or make proper sentences. I found the cooling pillow quite helpful fit the hot summer nights. Kerly (team member )
I overheat very easy. I hide in the summers. Does anything help?
Hi
. If you look at my post below, you will see links to cooling products used by people with MS, who can be severely affected by heat. You might find that they help you as well. Best wishes. - Lori (Team Member)
