Allison Echols
Share your answers below!
Claudifer Member
It wasn’t embarrassing, but I remember falling asleep in the dentist’s chair when I was a child. To this day (I’m over 50), I have to fight to stay awake at the dentist!
Any kind of situation where I recline is risky, so yes, that annual GYN appointment can be tricky too!
I have fallen asleep standing in the shower, in movie theaters, at my desk at work, you name it!
I was well known on my college campus for taking naps between classes in various student lounge areas. I had a travel alarm clock to wake me up on time.
Lori.Foster Community Admin
Hi
Claudifer Member
Well, I shower before bed now, rather than first thing in the morning. I keep myself awake mostly by staying engaged with people around me. But mostly, I just don’t put myself in situations where I know I’m likely to fall asleep.
And, if I’m feeling extra sleepy, I get home as soon as I can and plan for a “big sleep.” That might be anywhere from 13-20 hours, but if I do that once every 4-6 weeks, then I can have a fairly normal schedule as long as I take my medication on schedule and keep my sleep schedule in check.
CommunityMemberb96fd6 Member
One of the most embarrassing situations that I’ve encountered with narcolepsy? There is not one individually. Here are some examples. 1) When I am actively involved in a conversation with others. I try to keep an eye on their faces and when they look puzzled or confused, I know that I’ve said something that doesn’t make any sense. 2) I also struggle with dreaming while in an active conversation. When I was a trainer for medical billing, the young man that I was training at the time yelled my name and told me that he had no idea how to find the change in my purse and would I please wake up and teach him how to do his job 3) Writing while fully involved in conversations, having a clear idea of what I want to write; the topic, the purpose, etc. But when I look at the letter, there is nothing but gibberish, scribbles, and lines that make no sense whatsoever. 4) sleepwalking. How terrifying to wake up holding a bottle of RX pills, a butcher knife and rope. What would have happened if something haven’t startled me awake?
Some of these things are embarrassing, but more are terrifying. And how do I live with this? I’m no longer allowed to drive. There are many things I can’t do physically and yet my disability continues to be denied. One judge even making the comment that I am not disabled enough And another judge attributing all my problems to obesity. Sorry for being a downer, I am simply overwhelmed, I have no resources. I don’t know day to day where my life is going to go. So I guess the most embarrassing thing for me is having to beg for help.
Lori.Foster Community Admin
Lunasun18 Member
At the obgyn withvmy legs on the stirrups. She brought other doctors to look me. Then a couple months...Giving birth at the hospital.
Lori.Foster Community Admin
CommunityMember85e622 Member
CommunityMember4a6c75 Member
I fell asleep on the toilet for quite awhile until I fell off the toilet and hit my head on the floor! Well of coarse that woke me up! Man that hurt!!!
Lori.Foster Community Admin