Enhancing Patient Safety: Addressing Communication Breakdowns in HealthcareNavigating the corridors of healthcare systems can sometimes feel like a journey through a dense forest with no map. Each twist and...reactionscomments
Successful First Narcolepsy Conference I had the privilege of attending a national narcolepsy conference, something I never thought I would be able to do! For one...reactions2comments
Does Narcolepsy Make Me Unreliable?As someone living with narcolepsy, I have often wondered if my condition makes me an unreliable person. Narcolepsy is an incredibly unpredictable...reactions5comments
International Travel: When Preparations Fall ApartTraveling doesn't start the day you get on the plane, train, or bus; I think traveling starts from the day you purchase...reactionscomments
Medically MisunderstoodHave you ever walked into a doctor’s office hopeful that you will receive the help you need, only to leave an hour...reactionscomments
The Subtle Differences Between Nightmares and Night Terrors: A Personal PerspectiveLiving with narcolepsy type 1 (with cataplexy) has given me a unique relationship with sleep. I’ve become quite adept at handling the...reactionscomments
Putting a Ring On It: Getting Married While Managing a Sleep DisorderSome might have noticed my recent name change from “Craine” to “Bhavnani.” As of my writing this, I exited the dating realm...reactions1comment
What’s the Deal With Stimulants?Stimulants can potentially be helpful for those of us with narcolepsy. When I was first diagnosed with narcolepsy, though, sodium oxybate was...reactions8comments
Narcolepsy and the Root of MisdiagnosisThe journey to receiving a narcolepsy diagnosis often resembles a rollercoaster, fraught with misdiagnoses. It can take a long time to get...reactions14comments
Traveling with the Right TribeAs an avid traveler living with narcolepsy, I have had a wide variety of travel experiences. Often times I travel with friends...reactions4comments
NOT “Fat and Lazy” – Just NarcolepticLiving with narcolepsy as a person of a larger size can bring some added complications. I’d been overweight all my life when...reactions1comment
Keeping Your Family Connected When Raising a Child With a Rare DiseaseEditor's Note: This article was written by Elle Cole and originally appeared on our partner site RareDisease.net. Raising a child with a...reactionscomments
Hot Sleepy Girl SummerWhile I do not have a summer break from work like I did in school, a lot of activities still happen during...reactionscomments
Parental Partnership: Supporting Families With a Child Affected by a Rare DiseaseEditor's Note: This article was written by Elle Cole and originally appeared on our partner site RareDisease.net. When I became a mother...reactionscomments
Beyond Sleep: Navigating Memory Loss and Aging with NarcolepsyI not long ago had a poignant conversation with a friend who, like me, suffers from narcolepsy. Our discussion centered around the...reactions16comments
Narcolepsy Rest DaysI keep wondering, when will I feel better? I keep waiting for life to get easier with narcolepsy. So far it hasn’t...reactions2comments
How NOT to React to a Cataplexy AttackCataplexy is a sudden, brief loss of muscle tone often triggered by strong emotions. If you have never witnessed a cataplexy attack...reactionscomments
When You’re ALWAYS Tired…A typical day with a sleep disorder like narcolepsy can look like this… Wake up. Lay in bed. Bask in the morning...reactions17comments
Narcolepsy Letter to My 21-Year-Old SelfI went for lunch recently with a dear friend, someone I've known since I was 11. As we sat reminiscing, she posed...reactionscomments
Reading With NarcolepsyI love everything about books. Always have. From the crisp smell of their pages, to the buttery-soft feel of their words beneath...reactions2comments
