Coping With a New DiagnosisReceiving a new medical diagnosis can be shocking. Developing positive coping strategies can help you take back some control. Here are some tips to help you move forward after a...Reactions0reactionsComments0 comments
Exploring Advocacy AvenuesAs a person with narcolepsy, it’s important for me to find accessible ways to advocate for our community. As a person with severe Type 1 narcolepsy, I constantly feel like...Reactions0reactionsComments0 comments
Living with Multiple Sleep Disorders: Narcolepsy and Sleep ApneaSleep apnea and narcolepsy are both sleep disorders. But that is where the similarities between the two end. I have been diagnosed with sleep apnea as long as I have...Reactions0reactionsComments0 comments
Awake in Dreams: Navigating Reality's Thin Line with NarcolepsyLiving with narcolepsy is a rollercoaster of realities that often collide, leaving me caught between wakefulness and dreams in a way that's far from whimsical. Let's walk through the raw...Reactions0reactionsComments11 comments
The Benefits of Having a Service DogI have a German Shepherd service dog that I’ve had since she was eight weeks old. She is now at least five years old and we have an unbreakable bond...Reactions0reactionsComments2 comments
Too Hot to HandleI love traveling and I love sunny warm weather. I will admit that with my narcolepsy, summer can be a little more taxing. But still if I am looking for...Reactions0reactionsComments0 comments
Can’t Sleep, Can’t Stay AwakeWhen I explain to people that I have narcolepsy, one common way people like to respond is by saying, “Wow, I’d love to be able to sleep all of the...Reactions0reactionsComments6 comments
Not a CompetitionCompetition is an innate part of existing as human beings but can be generalized across anything living. Things that humans have built can be taken for granted based on the...Reactions0reactionsComments0 comments
Bedtime PoetryI've always been disabled Without knowing it Sleeping my day away thinking that it was normal when it wasn't hoping that one day my sleep would stop hindering me from...Reactions0reactionsComments0 comments
Narcolepsy Medication and Missing MealsThe first stimulant I was introduced to was Modafinil, and as much as I used to view it as one of the best and most memorable moments, I now realize...Reactions0reactionsComments0 comments
Fear of Hurting Myself or OthersAs a person with narcolepsy, I am always thinking about safety. It is the one thing that I am always aware of. I analyze the stores I walk into, and...Reactions0reactionsComments2 comments
How Do Narcolepsy Dreams Impact Spirituality?Narcolepsy is a neurological disease characterized by an inability to regulate sleep or wake cycles. This means that during the day when most people are awake, people with narcolepsy struggle...Reactions0reactionsComments0 comments
Interview With a Fellow NarcolepticLiving with narcolepsy can be a challenge and is not always easy. One of the things that I struggled with in the early days of my narcolepsy was a feeling...Reactions0reactionsComments0 comments
Making a Clean Space AccessibleLiving with a chronic disease like narcolepsy is hard enough, but keeping a clean living space on top of that? It’s virtually impossible! At least for me - when I...Reactions0reactionsComments0 comments
Navigating the Shadows of Narcolepsy StigmaLiving with narcolepsy is a unique and often misunderstood journey, marked by the ever-present stigma that infiltrates various aspects of our lives. Unlike many other chronic conditions, narcolepsy doesn't come...Reactions0reactionsComments3 comments
Is a Career With Idiopathic Hypersomnia Possible?Throughout my life, I went through a bunch of career changes before I was even diagnosed with idiopathic hypersomnia (IH). As a kid, my dream job was to be a...Reactions0reactionsComments0 comments
I Am Held Captive by My CataplexyI’ve lost someone close to me, and I am having a hard time both physically and emotionally handling it. Experiencing grief when you have a condition such as narcolepsy feels...Reactions0reactionsComments0 comments
Should You Live Alone With Narcolepsy?When I express how much I want to live on my own again, people always ask me, “Is it a good idea to live alone with narcolepsy?” It’s a question...Reactions0reactionsComments0 comments
Community Perspectives: Narcolepsy in Love, Life, and RelationshipsIt's no secret in this community that living with narcolepsy and maintaining relationships at the same time can come with unique challenges. Many people often associate the month of February...Reactions0reactionsComments3 comments
Narcolepsy and My Chaotic Relationship With FoodLiving with narcolepsy means that I often struggle to take care of my basic needs. Naturally, narcolepsy has made my relationship with food difficult at times. When my narcolepsy first...Reactions0reactionsComments0 comments