10 Questions to Ask Your Doctor When You Are Newly DiagnosedIt is often hard to know what to ask – or even where to begin – when you have questions about a new diagnosis. Many community members on this site...reactionscomments
A Journey Navigating Life Without MedicationI don't even remember how long I've been without medication. I remember thinking about how important it was to me and how important medication is to my life and my...reactions1comment
International Narcolepsy OutreachAs a person living with narcolepsy, I often feel the pressure of loneliness that comes along with living with a rare disease. Some days it feels like no one understands...reactionscomments
How TED Talks Helped Me Cope With NarcolepsyIn my journey with narcolepsy, TED Talks have been a beacon of inspiration, not just as a source of information but as a vital tool in managing my mental health...reactionscomments
Woes of Narcolepsy Nightly Binge-EatingBinge eating is a complicated issue with many possible sources of cause, from psychological to neurochemical. New medications are being developed that reduce binge-eating cravings. However, if the source of...reactions1comment
Join the Conversation: 5 Forums on the Challenges of Getting Diagnosed With NarcolepsyThe forums section of Narcolepsy.Sleep-Disorders.net has been a place to read conversations, start discussions, and connect with others about narcolepsy. These forums also have been a place to vent, find...reactionscomments
Narcolepsy and Being at Risk of Sexual AssaultContent note: The following article mentions sexual assault. If you or a loved one are struggling, consider calling the National Sexual Assault Hotline at 1-800-656-4673. You can also view our...reactionscomments
Coping With a New DiagnosisReceiving a new medical diagnosis can be shocking. Developing positive coping strategies can help you take back some control. Here are some tips to help you move forward after a...reactionscomments
Exploring Advocacy AvenuesAs a person with narcolepsy, it’s important for me to find accessible ways to advocate for our community. As a person with severe Type 1 narcolepsy, I constantly feel like...reactionscomments
Living with Multiple Sleep Disorders: Narcolepsy and Sleep ApneaSleep apnea and narcolepsy are both sleep disorders. But that is where the similarities between the two end. I have been diagnosed with sleep apnea as long as I have...reactionscomments
Awake in Dreams: Navigating Reality's Thin Line with NarcolepsyLiving with narcolepsy is a rollercoaster of realities that often collide, leaving me caught between wakefulness and dreams in a way that's far from whimsical. Let's walk through the raw...reactions11comments
The Benefits of Having a Service DogI have a German Shepherd service dog that I’ve had since she was eight weeks old. She is now at least five years old and we have an unbreakable bond...reactions2comments
Too Hot to HandleI love traveling and I love sunny warm weather. I will admit that with my narcolepsy, summer can be a little more taxing. But still if I am looking for...reactionscomments
Can’t Sleep, Can’t Stay AwakeWhen I explain to people that I have narcolepsy, one common way people like to respond is by saying, “Wow, I’d love to be able to sleep all of the...reactions6comments
Not a CompetitionCompetition is an innate part of existing as human beings but can be generalized across anything living. Things that humans have built can be taken for granted based on the...reactionscomments
Bedtime PoetryI've always been disabled Without knowing it Sleeping my day away thinking that it was normal when it wasn't hoping that one day my sleep would stop hindering me from...reactionscomments
Narcolepsy Medication and Missing MealsThe first stimulant I was introduced to was Modafinil, and as much as I used to view it as one of the best and most memorable moments, I now realize...reactionscomments
Fear of Hurting Myself or OthersAs a person with narcolepsy, I am always thinking about safety. It is the one thing that I am always aware of. I analyze the stores I walk into, and...reactions2comments
How Do Narcolepsy Dreams Impact Spirituality?Narcolepsy is a neurological disease characterized by an inability to regulate sleep or wake cycles. This means that during the day when most people are awake, people with narcolepsy struggle...reactionscomments
Interview With a Fellow NarcolepticLiving with narcolepsy can be a challenge and is not always easy. One of the things that I struggled with in the early days of my narcolepsy was a feeling...reactionscomments