Finding the Right Doctor (Part 1): What Poor Care Looks LikeI’m sure a lot of women will agree that we don’t always get fair treatment from doctors. Many times our concerns are brushed aside or flat out denied. We are...Reactions0reactionsComments0 comments
Crying Over Spilled MilkYou know those days where you feel like you are being tested by the universe? Anything and everything that could go wrong seems to be going wrong, and you are...Reactions0reactionsComments4 comments
What Is Automatic Behaviour in Narcolepsy?Automatic behaviour is when someone experiences a temporary brief sleep episode during an activity (e.g., eating and writing) and automatically continues with the activity for a few seconds or minutes...Reactions0reactionsComments32 comments
Story Sharing: Working Through Imposter Syndrome and Internal GatekeepingBefore starting working as an advocate, I had spent more than 2 years unemployed. This was due to a combination of factors, but it mostly boiled down to ill health...Reactions0reactionsComments23 comments
Why I Choose Patience (Even When It's Hard)“Wow, I wish I could fall asleep whenever I want to.” “You get to take naps during work? You’re so lucky!” “I can’t tell if I have narcolepsy or 2...Reactions0reactionsComments5 comments
Take the Managing Treatment and Medication SurveyThe Managing Treatment and Medication Survey is now closed. Thank you for your interest! Treatment is a big part of managing a chronic (long-term) health condition like narcolepsy. Often, we...Reactions0reactionsComments0 comments
Community Views: The Impact of Narcolepsy SymptomsNarcolepsy has deep and lasting consequences for daily living. Many situations, whether at work, home, or school, are made more challenging by narcolepsy symptoms. To better understand the impact of...Reactions0reactionsComments0 comments
The Concept of AcceptanceWhat is acceptance? The Oxford Learner's Dictionary describes it as “The quality of being willing to accept an unpleasant or difficult situation.” Acceptance is essentially a common and unremarkable word...Reactions0reactionsComments10 comments
Narcolepsy and Mental IllnessContent Note: This article mentions suicide ideation. If you or a loved one are experiencing suicidal thoughts, there are resources available for support including the National Suicide Prevention Lifeline (1-800-273-8255)...Reactions0reactionsComments2 comments
College and NarcolepsyI recently started going to college again this summer, and I am full-time. This is the first time I have been in school since before my narcolepsy diagnosis. This time...Reactions0reactionsComments25 comments
'Sleepiness Is Not Laziness' The Way We Act in Our Dreams Is Proof of That!The narcolepsy community has long used this phrase. This is because, unfortunately, a lot of people still think of sleepiness this way. So many of us are shamed for our...Reactions0reactionsComments6 comments
Camping With NarcolepsyIt is tough being an outdoorsy person with a disability. This probably doesn’t come as a surprise. A disability is defined as a condition that impacts one or more life...Reactions0reactionsComments1 comments
The Sun Won't SetI recently went on an international trip to Sweden to visit my brother. If you haven’t already, you can read my article about traveling with narcolepsy. Thankfully, I managed to...Reactions0reactionsComments4 comments
Benefits of Narcolepsy Support GroupsI attended my first narcolepsy support group meeting in 2020. I was stunned to see the vibrancy and variety in people who attended. I felt incredibly validated while listening to...Reactions0reactionsComments2 comments
Fairy Tales Don't Always End in Happily Ever AfterFor many years, I heard about the "miracle drug" called Xyrem. People from the United States of America who used it were saying it contributed to the reason they regained...Reactions0reactionsComments1 comments
Shopping With Narcolepsy Is Friggin' HardA typical Tuesday morning might find me in the aisles of my local grocery store. Tiredness is etched underneath my eyes. If I have my service dog with me, she...Reactions0reactionsComments0 comments
Behind the Scenes of Narcolepsy: The Struggle to Remember“Seriously, you forgot?” This is a phrase I have become accustomed to hearing often in the last few years. The most common tones in which these words are uttered usually...Reactions0reactionsComments17 comments
Internalized AbleismAccording to the definition given by Britannica, ableism is a type of discrimination where able-bodied people are seen as normal and superior to those with a disability, resulting in prejudice...Reactions0reactionsComments3 comments
Are People With Narcolepsy Safe?“What if I am stopped by police and can’t understand their demands?” I ask my friend, after expressing my fear of police due to my hearing impairment. “I just don’t...Reactions0reactionsComments9 comments
Narcoleptic Nap Guide: Drowsy Driving Edition Part 2This article is part 2 of my Narcoleptic Nap Guide series. You can read part 1 where I share tips for reducing risk on the road. In this article, we...Reactions0reactionsComments1 comments