How Narcolepsy Styles MeFrom pajamas to out-the-door, this guide gives you a peek into my narcolepsy-related wardrobe choices. Narcolepsy makes it difficult for me to keep up with able-bodied people. I first noticed...Reactions0reactionsComments1 comments
The Invisible Illness MaskThere are so many things that we have to conceal from the world every single day. Everyone is going through their own struggles, and in "polite society," we all must...Reactions0reactionsComments10 comments
What Really Happens if I Call the Suicide Hotline?"One of the most depressing things about narcolepsy is knowing that this is forever with no way of being able to cure it. It leaves me feeling deflated and frustrated...Reactions0reactionsComments0 comments
Broken ExpectationsFamily can be your biggest support system, and they can also be a huge obstacle. Wouldn’t it be great if it was like it is on television? You find out...Reactions0reactionsComments0 comments
Cataplexy: Is Seeing Believing?Narcolepsy is a chronic, invisible illness. This means that many of our symptoms are unable to be seen by the outside world. Therefore, people can unintentionally forget its existence, which...Reactions0reactionsComments0 comments
Managing Stress and Narcolepsy: Part 2This article is Part 2 of "Managing Stress and Narcolepsy." Read Part 1 here!Narcolepsy isn’t often easy to live with. There are many symptoms that I experience that impact my...Reactions0reactionsComments6 comments
Pickles and GigglesHave you ever been so overwhelmed that you collapse and become paralyzed? You can hear people trying to help you, but you cannot respond to them. Your brain is working...Reactions0reactionsComments0 comments
Narcolepsy: My University ExperienceMost people will never understand the difficulties of living with narcolepsy. For many people, studying is already a hard enough task, but for those of us with narcolepsy, it can...Reactions0reactionsComments0 comments
Ask Our Health Leaders: Managing Insomnia and Sleep Problems in NarcolepsyInsomnia, sleeplessness, and disturbed sleep are lesser-known symptoms of narcolepsy that many people in the community experience. Some people have found relief from their insomnia and other sleep problems with...Reactions0reactionsComments0 comments
Lost Friendships Are Not Your FaultIn my opinion, throughout the years, making friends and keeping friends with idiopathic hypersomnia (IH) has been hard. I’ve lost friends because I haven’t been able to constantly keep up...Reactions0reactionsComments3 comments
Stimulants: A Bittersweet Taste of Momentary FreedomI still remember my very first experience with stimulants. It was an experience that I can't forget even if I tried. For those who have never taken stimulants before, I...Reactions0reactionsComments0 comments
Does Anyone Look Like Me? Underdiagnosed and UnderrepresentedSince I was a small child, I have always appreciated representation. I enjoy seeing myself represented on television, in adverts, and in literature. I think this is something I recognize and...Reactions0reactionsComments3 comments
Who I Was Before NarcolepsyI miss the old me. The me that I used to be, before narcolepsy. I miss that person that could stay up studying for all hours of the night, memorizing...Reactions0reactionsComments0 comments
The Reality of Imposter Syndrome in Narcolepsy"Imposter syndrome" is a term that has become well-known in recent years. Although it’s frequently associated with success-related situations, it’s also very applicable to invisible illnesses like narcolepsy. For those...Reactions0reactionsComments0 comments
8 Natural Ways to Stay AwakeWe are always searching for new ways to stay awake, and while medication is undeniably essential for many of us, we can’t forget that there are other things that can...Reactions0reactionsComments4 comments
Learning to Make Myself a PriorityI am so excited to be able to share my narcolepsy experiences with all of you again! I have taken a year off to concentrate on my health, and it...Reactions0reactionsComments3 comments
Narcolepsy and GriefGrief is something that I have been used to from a young age. It is extremely hard to go through, but narcolepsy and grief feels like a different ball game...Reactions0reactionsComments1 comments
Managing Stress and Narcolepsy: Part 1Narcolepsy and stress often go hand-in-hand. Cataplexy is a temporary paralysis that people with type 1 narcolepsy (like me) experience. It is triggered by heightened emotional states. Other ways in...Reactions0reactionsComments4 comments
Narcolepsy and Feeling Chronically AloneLiving with a chronic illness is hard. Living with an invisible chronic illness like narcolepsy is hard and extremely lonely. As a narcolepsy advocate and support group host, I have...Reactions0reactionsComments4 comments
5 Ways I Am Improving My Life With Narcolepsy This YearAll over my social media in recent months, I saw quotes like "new year, new me," or "out with the old, in with the new." Everyone was so pumped up...Reactions0reactionsComments5 comments