Narcolepsy and Surgery: Advocating for MyselfI have been struggling with my neck for quite a while. For some reason, I attributed it to sleeping more than the average person. It never dawned on me that...Reactions0reactionsComments2 comments
Narcolepsy Hallucinations and the 5 SensesAs someone who regularly experiences hallucinations, it’s a topic that I find especially interesting. There is so much that we don’t understand, and even that the scientific community still doesn’t...Reactions0reactionsComments17 comments
Starting Hard ConversationsI’ve been living with narcolepsy since my college years. It was then that personal relationships with other people suddenly became much harder to maintain. I lost a lot of friends...Reactions0reactionsComments1 comments
My Job Title Does Not Define Me!Have you ever imagined how different life would be if you didn’t go to work each day? I used to daydream about staying home and all the joy it would...Reactions0reactionsComments0 comments
Living With Narcolepsy and ParasomniaLiving with a sleep disorder can be a challenging and often isolating experience. Two out of the 5 sleep disorders I have are parasomnia and narcolepsy, both of which can...Reactions0reactionsComments0 comments
5 Ways I Survived College With Excessive Daytime SleepinessIn December of 2022, I turned in my senior thesis and received my degree. Then, in May 2023, I walked for my college graduation. It was the moment I worked...Reactions0reactionsComments0 comments
When Having Narcolepsy Ruins Your DayI recently had the experience of getting my day ruined by narcolepsy — or, rather, my day was ruined because of the way I was treated due to my narcolepsy!...Reactions0reactionsComments0 comments
When Weather Affects My SymptomsSummer is here! I don’t know about you, but a hot summer day is bittersweet for me. I love to lay in the sun and bask in the weather. However...Reactions0reactionsComments0 comments
5 Ways I Cope With Narcolepsy BurnoutLiving with narcolepsy means that I have a low energy capacity. This means that I only have so much energy to allocate to daily activities. When I overextend myself, especially...Reactions0reactionsComments17 comments
The Benefits of Using a Pill Box OrganizerFor as long as I’ve known myself, I’ve been aware that my memory is not the best. I’m not sure if this has anything to do with my narcolepsy (it...Reactions0reactionsComments0 comments
Sometimes the Truth is Hard to HearIn a previous article, I talked about my weight loss adventure and how hard it was to get motivated and STAY motivated. I would like to explain a little more...Reactions0reactionsComments1 comments
Narcolepsy and Memory: When Recollections VaryI have a memory of a vivid hallucination with my narcolepsy. It's a traumatic memory. I remember feeling frightened. I remember running to get away from danger. I can remember charging from...Reactions0reactionsComments0 comments
Trying a Weighted Blanket for a Better Night's SleepOne of the things I have recently been really struggling with is my sleep at night. It has been extremely fragmented, and I am waking up constantly throughout the night...Reactions0reactionsComments1 comments
Narcolepsy: It's the Little ThingsBeing diagnosed with narcolepsy changes your life in many ways. There are some changes which are easy to notice from the outside — things like taking naps during the day...Reactions0reactionsComments2 comments
Living Authentically With NarcolepsyLiving with narcolepsy comes with a lot of rejection. I’ve personally lost job opportunities, friends, careers, and more due to my narcolepsy symptoms. It wasn’t just my narcolepsy, though –...Reactions0reactionsComments4 comments
Pushing Through Limitations With AccommodationsHave you ever been invited to a concert or event and said yes, only to realize it might be a problem with your narcolepsy and/or cataplexy? I was invited to...Reactions0reactionsComments0 comments
Let’s Talk About SleepSomething I have been wondering about recently is how similar our sleeping and dreaming habits are within a family. Are my vivid dreams, restless legs syndrome, and sleep paralysis just...Reactions0reactionsComments0 comments
Sleeping Cost Me My Golf ScholarshipWhen I was around 7 years old, my mother worked long shifts to support us. In turn, my grandmother ended up taking care of me during the summer when school...Reactions0reactionsComments0 comments
Developing an Unexpected ParasomniaHaving narcolepsy can often go hand in hand with having parasomnias. While anyone can suffer from parasomnias, those of us with narcolepsy are much more likely to experience them compared...Reactions0reactionsComments0 comments
Community Views: Parenting With NarcolepsyLiving with narcolepsy can be hard for anyone to manage, but being a parent with narcolepsy and caring for children while managing your symptoms can pose unique challenges. We recently...Reactions0reactionsComments2 comments