I have had narcolepsy type 1 for more than 8 years. I am at a loss for what to do. I lost my job because of folks not understanding it.
Losing my job
Let me explain. I had a boss that didn’t want to work with me because of it and they moved to a new location, even though I had the work accommodation approval allowing me 15-minute naps 3 times a day. At the new location with a new boss, I missed a flight because of difficulties getting medication. I was fired not because of job performance but because I missed a flight due to difficulties getting medication. You would think I could file a successful lawsuit because of my disability. Nope. EEOC dismissal.
Finding the right doctor
So currently I am unemployed using Medicare and in between doctors. One of the doctors who initially gave me the medication later decided to tell me to find a new doctor because he’s not used to prescribing this type of medication. I am hoping that the new doctor will give me a prescription but he is backlogged until January. As I'm writing this post I am pausing often because my emotions are making me go into cataplexy fits.
Dealing with my emotions
Sometimes I wish they could cut out the parts of my brain that have emotions because dealing with uncontrollable sleep, delusions, and trying to calm my emotions like Spock is unbearable.
I am truly sorry that I do not have something uplifting to post, I am just in a bad place right now and have to vent. At least in some way, it makes me feel better to talk to people that understand.
At what age were you diagnosed with narcolepsy?