The Hidden Power of Sunflower Lanyards: My Journey Through an Accessibility RevolutionAs someone living with narcolepsy, a hidden disability that most people can’t immediately identify, the sunflower lanyard has become an essential part of my life. Before the lanyard, I relied...reactionscomments
Personal Experience with Jet Lag and Narcolepsy ManagementI traveled from London, departing on a Friday evening and arriving at my destination Australia, Queensland, at 7:00 AM Sunday. The journey was smooth, and I managed to stay awake...reactionscomments
Enhancing Patient Safety: Addressing Communication Breakdowns in HealthcareNavigating the corridors of healthcare systems can sometimes feel like a journey through a dense forest with no map. Each twist and turn brings new encounters, some smooth, others fraught...reactionscomments
International Travel: When Preparations Fall ApartTraveling doesn't start the day you get on the plane, train, or bus; I think traveling starts from the day you purchase your ticket. From that moment you hit preparation...reactionscomments
Traveling with the Right TribeAs an avid traveler living with narcolepsy, I have had a wide variety of travel experiences. Often times I travel with friends or people who know me and have an...reactions4comments
Beyond Sleep: Navigating Memory Loss and Aging with NarcolepsyI not long ago had a poignant conversation with a friend who, like me, suffers from narcolepsy. Our discussion centered around the common yet distressing issue of fatigue and, more...reactions13comments
Narcolepsy Letter to My 21-Year-Old SelfI went for lunch recently with a dear friend, someone I've known since I was 11. As we sat reminiscing, she posed an intriguing question: "What would you say to...reactionscomments
Too Hot to HandleI love traveling and I love sunny warm weather. I will admit that with my narcolepsy, summer can be a little more taxing. But still if I am looking for...reactionscomments
Interview With a Fellow NarcolepticLiving with narcolepsy can be a challenge and is not always easy. One of the things that I struggled with in the early days of my narcolepsy was a feeling...reactionscomments
Navigating Love and Narcolepsy: A Guide to Dating Someone With NarcolepsyDating someone with narcolepsy can bring unique challenges, but with understanding, communication, and empathy, you can build a strong and fulfilling relationship. Here's a guide to help you navigate the...reactionscomments
New Year, New Goals: Knowing Your WorthWe have come to the end of 2023 and are moving into 2024. As with millions around the globe, a new year brings new goals, resolutions, ideas, and targets. We...reactionscomments
Narcolepsy: A Comorbidity Magnet?Recently I have been unable to get one question out of my mind: Is narcolepsy a magnet for other illnesses, disorders, and diseases? It has led to me to trying to answer another...reactions14comments
Narcolepsy Extrovert to IntrovertI recently heard this analogy: An introvert wakes up in the morning with 5 coins, and every interaction takes a coin, and at the end of the day, they're depleted. An...reactions3comments
The Next StepI recently earned my barbering diploma. I will officially get my certificate in September or October. Last year, I decided to go back to school to learn a new skill...reactions1comment
Living With Narcolepsy and ParasomniaLiving with a sleep disorder can be a challenging and often isolating experience. Two out of the 5 sleep disorders I have are parasomnia and narcolepsy, both of which can...reactionscomments
Narcolepsy and Memory: When Recollections VaryI have a memory of a vivid hallucination with my narcolepsy. It's a traumatic memory. I remember feeling frightened. I remember running to get away from danger. I can remember charging from...reactionscomments
Let’s Talk About SleepSomething I have been wondering about recently is how similar our sleeping and dreaming habits are within a family. Are my vivid dreams, restless legs syndrome, and sleep paralysis just...reactionscomments
Does Anyone Look Like Me? Underdiagnosed and UnderrepresentedSince I was a small child, I have always appreciated representation. I enjoy seeing myself represented on television, in adverts, and in literature. I think this is something I recognize and...reactions3comments
Limitless, Yet LimitedI have a thirst for learning. I am always interested in developing a new skill, doing something new. I get restless and bored with the mundane. I crave a little...reactionscomments
Searching for DiversityI have been actively seeking out fellow people with narcolepsy for over 2 decades. I started out in online groups where I was talking with people online. Most of the...reactions2comments