Enhancing Patient Safety: Addressing Communication Breakdowns in HealthcareNavigating the corridors of healthcare systems can sometimes feel like a journey through a dense forest with no map. Each twist and turn brings new encounters, some smooth, others fraught... By Kerly Joy Bwoga3 min readBookmark for laterReactions0reactionsComments0 comments
International Travel: When Preparations Fall ApartTraveling doesn't start the day you get on the plane, train, or bus; I think traveling starts from the day you purchase your ticket. From that moment you hit preparation... By Kerly Joy Bwoga4 min readBookmark for laterReactions0reactionsComments0 comments
Traveling with the Right TribeAs an avid traveler living with narcolepsy, I have had a wide variety of travel experiences. Often times I travel with friends or people who know me and have an... By Kerly Joy Bwoga3 min readBookmark for laterReactions0reactionsComments4 comments
Beyond Sleep: Navigating Memory Loss and Aging with NarcolepsyI not long ago had a poignant conversation with a friend who, like me, suffers from narcolepsy. Our discussion centered around the common yet distressing issue of fatigue and, more... By Kerly Joy Bwoga2 min readBookmark for laterReactions0reactionsComments9 comments
Narcolepsy Letter to My 21-Year-Old SelfI went for lunch recently with a dear friend, someone I've known since I was 11. As we sat reminiscing, she posed an intriguing question: "What would you say to... By Kerly Joy Bwoga3 min readBookmark for laterReactions0reactionsComments0 comments
Too Hot to HandleI love traveling and I love sunny warm weather. I will admit that with my narcolepsy, summer can be a little more taxing. But still if I am looking for... By Kerly Joy Bwoga3 min readBookmark for laterReactions0reactionsComments0 comments
Interview With a Fellow NarcolepticLiving with narcolepsy can be a challenge and is not always easy. One of the things that I struggled with in the early days of my narcolepsy was a feeling... By Kerly Joy Bwoga3 min readBookmark for laterReactions0reactionsComments0 comments
Navigating Love and Narcolepsy: A Guide to Dating Someone With NarcolepsyDating someone with narcolepsy can bring unique challenges, but with understanding, communication, and empathy, you can build a strong and fulfilling relationship. Here's a guide to help you navigate the... By Kerly Joy Bwoga3 min readBookmark for laterReactions0reactionsComments0 comments
New Year, New Goals: Knowing Your WorthWe have come to the end of 2023 and are moving into 2024. As with millions around the globe, a new year brings new goals, resolutions, ideas, and targets. We... By Kerly Joy Bwoga4 min readBookmark for laterReactions0reactionsComments0 comments
Narcolepsy: A Comorbidity Magnet?Recently I have been unable to get one question out of my mind: Is narcolepsy a magnet for other illnesses, disorders, and diseases? It has led to me to trying to answer another... By Kerly Joy Bwoga3 min readBookmark for laterReactions0reactionsComments14 comments
Narcolepsy Extrovert to IntrovertI recently heard this analogy: An introvert wakes up in the morning with 5 coins, and every interaction takes a coin, and at the end of the day, they're depleted. An... By Kerly Joy Bwoga3 min readBookmark for laterReactions0reactionsComments3 comments
The Next StepI recently earned my barbering diploma. I will officially get my certificate in September or October. Last year, I decided to go back to school to learn a new skill... By Kerly Joy Bwoga3 min readBookmark for laterReactions0reactionsComments1 comments
Living With Narcolepsy and ParasomniaLiving with a sleep disorder can be a challenging and often isolating experience. Two out of the 5 sleep disorders I have are parasomnia and narcolepsy, both of which can... By Kerly Joy Bwoga4 min readBookmark for laterReactions0reactionsComments0 comments
Narcolepsy and Memory: When Recollections VaryI have a memory of a vivid hallucination with my narcolepsy. It's a traumatic memory. I remember feeling frightened. I remember running to get away from danger. I can remember charging from... By Kerly Joy Bwoga2 min readBookmark for laterReactions0reactionsComments0 comments
Let’s Talk About SleepSomething I have been wondering about recently is how similar our sleeping and dreaming habits are within a family. Are my vivid dreams, restless legs syndrome, and sleep paralysis just... By Kerly Joy Bwoga3 min readBookmark for laterReactions0reactionsComments0 comments
Does Anyone Look Like Me? Underdiagnosed and UnderrepresentedSince I was a small child, I have always appreciated representation. I enjoy seeing myself represented on television, in adverts, and in literature. I think this is something I recognize and... By Kerly Joy Bwoga4 min readBookmark for laterReactions0reactionsComments3 comments
Limitless, Yet LimitedI have a thirst for learning. I am always interested in developing a new skill, doing something new. I get restless and bored with the mundane. I crave a little... By Kerly Joy Bwoga3 min readBookmark for laterReactions0reactionsComments0 comments
Searching for DiversityI have been actively seeking out fellow people with narcolepsy for over 2 decades. I started out in online groups where I was talking with people online. Most of the... By Kerly Joy Bwoga4 min readBookmark for laterReactions0reactionsComments2 comments
What is the most helpful with your personal journey, support groups or medical progress with Narcolepsy?New strategies...Reactions0reactionsComments1 repliesExerciseIntimacy & RelationshipsCoping
"Narcolepsy? What's That?"The number of people I know with narcolepsy grew greatly during the COVID-19 pandemic. Pre-pandemic I had met a few people with narcolepsy by attending the Narcolepsy UK conferences, but... By Kerly Joy Bwoga3 min readBookmark for laterReactions0reactionsComments0 comments