What is the most helpful with your personal journey, support groups or medical progress with Narcolepsy?New strategies...reactions1replyCopingExerciseIntimacy & Relationships
"Narcolepsy? What's That?"The number of people I know with narcolepsy grew greatly during the COVID-19 pandemic. Pre-pandemic I had met a few people with narcolepsy by attending the Narcolepsy UK conferences, but...reactionscomments
The Narcoleptic Insomniac ParadoxI sleep a lot. I fall asleep on the bus, the train, in waiting rooms, in church. Slightly busy days for the average person can completely wipe me out. I...reactions15comments
Falling Into Another DiagnosisI have been living with obstructive sleep apnea for about 12 years. Whilst I had heard of sleep apnea before I was diagnosed and was aware of some of the...reactions4comments
Cataplexy vs. MeI have been living and battling with my cataplexy since before my diagnosis 20 years ago. In the early days before my medication was regulated, I felt like the cataplexy...reactions2comments
The War Between Sleeping and DreamingAs a person with narcolepsy, I sleep a lot, and I am almost always sleepy. It is often a surprise to people when I say I do not enjoy sleeping...reactions1comment
If Cats Could Talk (Part 2): Having a BrotherThis article is part of a series written from the perspective of Kerly's cat, DJ. You can read Part 1 here. Back by popular demand. Guess who's back, back again...reactions1comment
The Narcoleptic Metamorphosis: From Social Butterfly to HermitGrowing up, I was always a social butterfly. I always had friends over, was always attending events like concerts and poetry nights. The last thing anyone would have called me...reactions9comments
Mum's the WordToday I would like to introduce my mother, Dorothy, as we commemorate 21 years since I was diagnosed. In this interview, I asked her to share her experiences of parenting...reactions1comment
The Difference 17 Years MadeLiving with narcolepsy requires adaptability, realising that things will not necessarily remain the same. I have been living with narcolepsy for the last 2 decades. I have been through seasons...reactions2comments
Sleeping Girl SummerIn the summer of 2022, London was hit with a massive heatwave, with the hottest day on record at 40°C / 104°F. I have always been a person who loves...reactions4comments
Finding My TribeBack in 2020, during the famous pandemic of COVID-19, something wonderful was about to start: something that would change the lives of all those who got involved. At that time...reactions5comments
Narcolepsy and Newton's CradleAlmost everyone can picture Newton's cradle: the 5 balls hanging in the centre with the one at the side constantly being knocked into the air. I've given it some thought...reactions5comments
My Body Is Trying to Kill MeAs I sit here in the Kenyan countryside in the 32-degree (C) heat, I find myself reflecting on the crazy 3 months it took to get to this point. Back...reactions5comments
If Cats Could TalkMy name is DJ Bwoga, and I am a Russian blue mixed cat. Kerly adopted me in December 2017. When I would think of adoption, I hoped to be chosen...reactions3comments
Fairy Tales Don't Always End in Happily Ever AfterFor many years, I heard about the "miracle drug" called Xyrem. People from the United States of America who used it were saying it contributed to the reason they regained...reactions1comment
International Travel With NarcolepsyTravel excites me for 2 main reasons: the anticipation of new adventures and the joy of seeing familiar faces. Travelling can be a stressful experience for me because no matter...reactions3comments
More Than Just SleepMost people's first experience of narcolepsy is what is presented in movies or TV shows, the narcoleptic character falling into a deep sleep in the middle of a walk or...reactions2comments
We Sleep More Than We're Awake2020 was a challenging year. It felt like the whole world was a type 1 narcoleptic off their medication: out of control, unpredictable, and staying inside for their protection. COVID-19...reactions5comments
How My College Maths Teacher Saved My LifeWhen I attended sixth form college, I had to retake maths because I had passed all my general certificates of secondary education except that. I was heartbroken about this, but...reactions4comments
