Kerly Joy Bwoga

The number of people I know with narcolepsy grew greatly during the COVID-19 pandemic. Pre-pandemic I had met a few people with narcolepsy by attending the Narcolepsy UK conferences, but...

I sleep a lot. I fall asleep on the bus, the train, in waiting rooms, in church. Slightly busy days for the average person can completely wipe me out. I...

I have been living with obstructive sleep apnea for about 12 years. Whilst I had heard of sleep apnea before I was diagnosed and was aware of some of the...

I have been living and battling with my cataplexy since before my diagnosis 20 years ago. In the early days before my medication was regulated, I felt like the cataplexy...

As a person with narcolepsy, I sleep a lot, and I am almost always sleepy. It is often a surprise to people when I say I do not enjoy sleeping...

This article is part of a series written from the perspective of Kerly's cat, DJ. You can read Part 1 here. Back by popular demand. Guess who's back, back again...

Growing up, I was always a social butterfly. I always had friends over, was always attending events like concerts and poetry nights. The last thing anyone would have called me...

Today I would like to introduce my mother, Dorothy, as we commemorate 21 years since I was diagnosed. In this interview, I asked her to share her experiences of parenting...

Living with narcolepsy requires adaptability, realising that things will not necessarily remain the same. I have been living with narcolepsy for the last 2 decades. I have been through seasons...

In the summer of 2022, London was hit with a massive heatwave, with the hottest day on record at 40°C / 104°F. I have always been a person who loves...

Back in 2020, during the famous pandemic of COVID-19, something wonderful was about to start: something that would change the lives of all those who got involved. At that time...

Almost everyone can picture Newton's cradle: the 5 balls hanging in the centre with the one at the side constantly being knocked into the air. I've given it some thought...

As I sit here in the Kenyan countryside in the 32-degree (C) heat, I find myself reflecting on the crazy 3 months it took to get to this point. Back...

My name is DJ Bwoga, and I am a Russian blue mixed cat. Kerly adopted me in December 2017. When I would think of adoption, I hoped to be chosen...

For many years, I heard about the "miracle drug" called Xyrem. People from the United States of America who used it were saying it contributed to the reason they regained...

Travel excites me for 2 main reasons: the anticipation of new adventures and the joy of seeing familiar faces. Travelling can be a stressful experience for me because no matter...

Most people's first experience of narcolepsy is what is presented in movies or TV shows, the narcoleptic character falling into a deep sleep in the middle of a walk or...

2020 was a challenging year. It felt like the whole world was a type 1 narcoleptic off their medication: out of control, unpredictable, and staying inside for their protection. COVID-19...

When I attended sixth form college, I had to retake maths because I had passed all my general certificates of secondary education except that. I was heartbroken about this, but...