Active todayLet's Make a List of our Memory SymptomsI thought it would be great for us to have a really good list of our memory symptoms. After looking around I found no such list out there (if anybody...Reactions0reactionsComments3 repliesSymptomsResearch & Clinical TrialsCoping
Does anyone else feel helpless?For a quick backstory-I've been excessively tired for as long as I can remember. I have spent the last 6 years struggling to stay awake, and trying to have the...Reactions0reactionsComments4 repliesNewly DiagnosedPrescription MedicationCoping
FeaturedWhich narcolepsy symptom impacts your daily activities the most?In your experiences, which narcolepsy symptom(s) impacts your daily life activities the most? Has this changed over time? Also, do you have any tips on how to deal with it?...Reactions0reactionsComments9 repliesCopingSymptoms
Cataplexy war scarsI'm curious to know if anyone else is keeping track of all the cataplexy/accident related scars? It might sound weird but I started a sort of "album" of pictures of...Reactions0reactionsComments11 repliesCataplexyCopingSymptoms
Driving - Travel - How do you manage?How do you manage daily life regarding driving? My radius is approximately 5 miles, and that is after a nap and with medications. How do people with narcolepsy manage to...Reactions0reactionsComments10 repliesTravelCoping
Fill in the blank: The hardest thing about living with narcolepsy is ___________.What is the hardest thing about living with narcolepsy? Share your answers below!...Reactions0reactionsComments77 repliesCoping
Doctors disagree on diagnosis, medication anxietyLast year I had a sleep study and sleep latency test done to investigate my excessive daytime sleepiness. The sleep study was normal, and the sleep latency test showed normal...Reactions0reactionsComments5 repliesCopingDaytime sleepinessDiagnosis
Being able to clean one room at a time. I'm wondering if many of you deal with this issue... I can't stay focused on one room. I begin to clean up kitchen, but before I can start, I have...Reactions0reactionsComments1 repliesTips & AdviceSymptomsCoping
switching providers and not having medication for over 30 daysI am switching providers for the treatment of my Narcolepsy and my old provider didn't give me any refills on meds so I haven't had them in over 30 days...Reactions0reactionsComments7 repliesCopingHealthcare TeamPrescription Medication
Narcolepsy and PregnancyHas anyone else found that their symptoms are exacerbated while pregnant? Usually, my paralysis/hallucinating state only last for 10 seconds to a minute at most. Lately i have been stuck...Reactions0reactionsComments4 repliesCopingSymptomsSleep Paralysis