Skip to Accessibility Menu Skip to Login Skip to Content Skip to Footer

Forums

Read conversations, start a discussion, and connect with others about narcolepsy.

FeaturedActive 4 days ago

Feeling Like a Fraud

Anyone else feel this way sometimes? Like you don't have an actual medical problem, you're actually just lazy and undisciplined? I've been on max-dose stimulants for so long that my...

VENT: How are you doing? (Honestly)

Life with narcolepsy can be challenging. This is a safe space to vent about what's happening with you. How are you doing?...

A video series, an article, and a tool.

My efforts are about trumpeting towards the lived human experience with Narcolepsy. Shedding light on the overlap and interconnected vast expansive symptoms, going beyond some of the current consensus that...

How long did it take you to truly accept your narcolepsy diagnosis?

In this poll (https://narcolepsy.sleep-disorders.net/vote/poll/20931) Narcolepsy community members shared when they accepted their diagnosis. Here, they explain what helped them come to terms with it....

Driving - Travel - How do you manage?

How do you manage daily life regarding driving? My radius is approximately 5 miles, and that is after a nap and with medications. How do people with narcolepsy manage to...

Narcolepsy and terrible nightmares?

I have now got to the stage where I am actually frightened to fall asleep and I try my absolute best to fight sleep (which as all narcoleptics know is...

Sleep specialists opinon

I collapse on a daily basis because i fall aslepp i have had 7 fractures (confirmed) in last 3 yrs. I was told i do not have narcolepsy because its...

A poem about hypersomnia

Her Hypersomnia Once swift to get up, she now trembles While dreaming of a rising sun. Her eyes, heavy, resist the call of light. Her mind, foggy, fails to focus...

Stopping Medication

Does anyone ever feel as though they would prefer to live without medication?...

Narcolepsy Sucks

I don't feel lazy EVER !!! I , NOW, COULD GIVE A FLYING FLICK WHAT PEOPLE THINK(🦍🐒🤡🦧🤯🤯😱) WHAT THEY EXPECT MY "FAMILY" EXCEPT FOR MY DAUGHTERS ARE AWOL, SELFISH, IGNORANT...

Categories

Select a category to find topics that interest you.