Cataplexy war scarsI'm curious to know if anyone else is keeping track of all the cataplexy/accident related scars? It might sound weird but I started a sort of "album" of pictures of...Reactions 0 reactions Comments11 repliesCataplexyCopingSymptoms
Driving - Travel - How do you manage?How do you manage daily life regarding driving? My radius is approximately 5 miles, and that is after a nap and with medications. How do people with narcolepsy manage to...Reactions 0 reactions Comments10 repliesTravelCoping
Fill in the blank: The hardest thing about living with narcolepsy is ___________.What is the hardest thing about living with narcolepsy? Share your answers below!...Reactions 0 reactions Comments77 repliesCoping
Doctors disagree on diagnosis, medication anxietyLast year I had a sleep study and sleep latency test done to investigate my excessive daytime sleepiness. The sleep study was normal, and the sleep latency test showed normal...Reactions 0 reactions Comments5 repliesCopingDaytime sleepinessDiagnosis
Being able to clean one room at a time. I'm wondering if many of you deal with this issue... I can't stay focused on one room. I begin to clean up kitchen, but before I can start, I have...Reactions 0 reactions Comments1 repliesTips & AdviceSymptomsCoping
switching providers and not having medication for over 30 daysI am switching providers for the treatment of my Narcolepsy and my old provider didn't give me any refills on meds so I haven't had them in over 30 days...Reactions 0 reactions Comments7 repliesCopingHealthcare TeamPrescription Medication
Narcolepsy and PregnancyHas anyone else found that their symptoms are exacerbated while pregnant? Usually, my paralysis/hallucinating state only last for 10 seconds to a minute at most. Lately i have been stuck...Reactions 0 reactions Comments4 repliesCopingSleep ParalysisSymptoms
Falling asleep and falling downEvery night no matter how I try to stay awake while heading to the bathroom or sitting on the toilet, I fall asleep. I have put a hole in my...Reactions 0 reactions Comments1 repliesCopingTips & AdviceService Dog
FeaturedWhich narcolepsy symptom impacts your daily activities the most?In your experiences, which narcolepsy symptom(s) impacts your daily life activities the most? Has this changed over time? Also, do you have any tips on how to deal with it?...Reactions 0 reactions Comments9 repliesCopingSymptoms
FeaturedPre-DiagnosisHello everyone, I am suspected to have narcolepsy. I've been to doctors and a neurologist who all agree with this assumption. Currently I'm waiting to be transferred into a sleep...Reactions 0 reactions Comments5 repliesCopingNewly Diagnosed