Narcolepsy and terrible nightmares?I have now got to the stage where I am actually frightened to fall asleep and I try my absolute best to fight sleep (which as all narcoleptics know is...Reactions0reactionsComments3 repliesCoping
Sleep specialists opinonI collapse on a daily basis because i fall aslepp i have had 7 fractures (confirmed) in last 3 yrs. I was told i do not have narcolepsy because its...Reactions0reactionsComments0 repliesCopingDiagnosis
A poem about hypersomniaHer Hypersomnia Once swift to get up, she now trembles While dreaming of a rising sun. Her eyes, heavy, resist the call of light. Her mind, foggy, fails to focus...Reactions0reactionsComments1 repliesCoping
Stopping MedicationDoes anyone ever feel as though they would prefer to live without medication?...Reactions0reactionsComments17 repliesCopingPrescription MedicationSide Effects
Narcolepsy Sucks I don't feel lazy EVER !!! I , NOW, COULD GIVE A FLYING FLICK WHAT PEOPLE THINK(🦍🐒🤡🦧🤯🤯😱) WHAT THEY EXPECT MY "FAMILY" EXCEPT FOR MY DAUGHTERS ARE AWOL, SELFISH, IGNORANT...Reactions0reactionsComments1 repliesCopingFriends & Family
Narcolepsy and PregnancyHas anyone else found that their symptoms are exacerbated while pregnant? Usually, my paralysis/hallucinating state only last for 10 seconds to a minute at most. Lately i have been stuck...Reactions0reactionsComments4 repliesSleep ParalysisSymptomsCoping
WorkWhat do you all do for a living. I received disability but it is barely enough to pay the bills. Trying to brain storm jobs and maybe business or side...Reactions0reactionsComments3 repliesDepressionDaytime sleepinessCoping
Attending Events With Narcolepsy Going to events can be a challenge without managing a chronic condition. Do you attend shows, conventions or other events with narcolepsy? How does narcolepsy affect your experience? What do...Reactions0reactionsComments0 repliesAwarenessCoping
Driving - Travel - How do you manage?How do you manage daily life regarding driving? My radius is approximately 5 miles, and that is after a nap and with medications. How do people with narcolepsy manage to...Reactions0reactionsComments22 repliesTravelCoping
Extreme lethargy, lower concentration and awareness Find right meds, maybe combination of two, desperate to improve my life, it's been many years and I haven't found the right meds....Reactions0reactionsComments1 repliesCopingTreatment