Active todayFill in the blank: The hardest thing about living with narcolepsy is ___________.What is the hardest thing about living with narcolepsy? Share your answers below...Reactions 0 reactions Comments2 repliesCoping
Active todayDiagnosed with Narcolepsy with Cataplexy in 1977. I started on Provigil after participating in the drug trial study. Would like contact from members who have been on Provigil or Nuvigil(Armodafinil...Would like to talk with Narcoleptics in their 60's, 70's, and 80's who have taken Provigil or NUVIGIL. WANT TO KNOW HOW THEY ARE DOING. HAVE THEY CONTINUED ON NUVIGIL...Reactions 0 reactions Comments0 repliesAwarenessCoping
Active 4 days agoNapHi I was wondering. Are the medication helping you to stay a wake the whole day or do most of you have to fall a sleep during the day, I...Reactions 0 reactions Comments0 repliesCopingDaytime sleepiness
Active 6 days agoStopping MedicationDoes anyone ever feel as though they would prefer to live without medication...Reactions 0 reactions Comments12 repliesCopingPrescription MedicationSide Effects
I am not diagnosed but would like to know some tips to deal with excessive tiredness and nap attacksSo I don't have a diagnosis yet, and may not even have narcolepsy. I have Long-COVID and it is presenting as that but who even knows with that sort of...Reactions 0 reactions Comments2 repliesCopingDaytime sleepinessSymptoms
Cataplexy war scarsI'm curious to know if anyone else is keeping track of all the cataplexy/accident related scars? It might sound weird but I started a sort of "album" of pictures of...Reactions 0 reactions Comments4 repliesCataplexyCopingSymptoms
Community meetings?Hello! I am curious to learn if there are any online meetings here. I live in Russia and the situation with narcolepsy support in my country is literally non-existent...Reactions 0 reactions Comments4 repliesAwarenessCoping
How are your holidays looking?Hey! Just wanted to know how everyone is coping with the upcoming holidays, if you're having any difficulties or even if you just have any cool plans?? Wishing everyone happy...Reactions 0 reactions Comments8 repliesSymptomsCopingMental Health
FeaturedWhat is the one thing you can't live without?If you could only have one thing that you couldn't live without that helps you cope with your symptoms, what would that be? (Can be a thing, a person, a...Reactions 0 reactions Comments2 repliesCopingSymptomsTips & Advice
