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Read conversations, start a discussion, and connect with others about narcolepsy.

Active 3 days ago

Finding the right mix

After recently being diagnosed with type 2 narcolepsy I am trying to find my right medication mix to help keep me awake during the day and motivated. Currently am on...

How can I help answer questions and/or comments to ease any tensions for you?

Driving - Travel - How do you manage?

How do you manage daily life regarding driving? My radius is approximately 5 miles, and that is after a nap and with medications. How do people with narcolepsy manage to...

Medication

I wonder what types of medication or combination of medications work best together. I am currently taking 200 mg of Modafinil 2x a day, 20 mg of Ritalin 2x a...

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Feeling Like a Fraud

Anyone else feel this way sometimes? Like you don't have an actual medical problem, you're actually just lazy and undisciplined? I've been on max-dose stimulants for so long that my...

VENT: How are you doing? (Honestly)

Life with narcolepsy can be challenging. This is a safe space to vent about what's happening with you. How are you doing?...

A video series, an article, and a tool.

My efforts are about trumpeting towards the lived human experience with Narcolepsy. Shedding light on the overlap and interconnected vast expansive symptoms, going beyond some of the current consensus that...

How long did it take you to truly accept your narcolepsy diagnosis?

In this poll (https://narcolepsy.sleep-disorders.net/vote/poll/20931) Narcolepsy community members shared when they accepted their diagnosis. Here, they explain what helped them come to terms with it....

Narcolepsy and terrible nightmares?

I have now got to the stage where I am actually frightened to fall asleep and I try my absolute best to fight sleep (which as all narcoleptics know is...

Sleep specialists opinon

I collapse on a daily basis because i fall aslepp i have had 7 fractures (confirmed) in last 3 yrs. I was told i do not have narcolepsy because its...

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