At What Age Were You Diagnosed With Narcolepsy?
I was diagnosed at age 22. And it’s never been well managed. I’m on Vyvanse and I’m still tired all the time.
I wish you had more energy. Do you have confidence in your sleep specialist? If not, have you considered switching to someone new? - Lori (Team Member)
Symptoms seemed to start immeadiately following graduation from college. Took 2 years to finally get the diagnosis in 2006. I must have been 24.
I'm glad you were at least able to get through college before the sympoms became significant. How are you doing now? Is your narcolepsy well managed? Warmly, Lori (Team Member)
diagnosed at 17, found out about diagnosis at 34...
Hi
. Welcome to the community! Did someone withhold your diagnosis from you? If so, that seems like an awful thing to do. I hope the intentions were good even if the decision might have been misguided. Best of all wishes. - Lori (Team Member)
I was in my late 40’s- 40… it was after 3 consecutive car accidents… where I said “I’m falling asleep!”
My daughter noticed it first… when she was young…& we woukd travel. I told her yell at me when I got sleepy…! I did everything back then - stop the car, get out and run around the car, do exercise, etc. Then I’d pull over and get coffee. At times, I’d stop at a station, sleep for about 39 minutes… then get coffee and start again. I’d buy bubble gum and sweet tarts and play music loud… everything I could think of! Thank God I had my daughter to help me. It was only when I was Aline, that I had accidents. Be ending in a coma. It was terrifying.How terrifying! When you live with something like that, it can be hard to know there is anything abnormal about it. Thank goodness you survived and you're still with us today. Gentle hugs. - Lori (Team Member)
