I was diagnosed in 2019 with type 1 Narcolepsy w/ Cataplexy and was immediately put on Venlafaxine to treat the Cataplexy. I knew nothing about it at the time so I agreed. Over 4 years later and I am trying to taper off of the Venlafaxine, but it’s been a horrific and traumatizing experience. I learned the hard way that stopping Venlafaxine cold turkey or even a 3-6 week taper was not possible. Now I taper 10% at a time every 30 days, and it’s still barely manageable. The withdrawal symptoms are like a living nightmare, they include dissociation, Akathisia, brain zaps, insomnia, anxiety, intense mood swings, tremors, and the list goes on.
Has anyone else had this experience or anything like it? I’m desperate. I need advice on how to manage the cataplexy while getting off of Venlafaxine. Any help wld be so appreciated. ❤️