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What’s helpful during cataplexy attacks?

Cataplexy attacks can be outwardly shocking to observe. They can also be dangerous for those of us who experience them. When I have full-body cataplexy attacks the people around me...

Narcolepsy/ Doctors/ St. Louis

I am looking for sleep doc suggestions from Narcoleptics that experience chronic Cataplexy in the St. Louis area....

Can you tell when you are about to have a cataplexy attack?

Are there any early warning signs that let you know a cataplexy attack is coming? Share below!...

Parenting with narcolepsy type 1

Hello, I am Jazmane, I am 30 years old, and I am a single mother of 2 handsome boys. Can you imagine the energy of a 7- and 2-year-old everyday...

Cataplexy war scars

I'm curious to know if anyone else is keeping track of all the cataplexy/accident related scars? It might sound weird but I started a sort of "album" of pictures of...

Cataplexy Treatment - Venlafaxine

I was diagnosed in 2019 with type 1 Narcolepsy w/ Cataplexy and was immediately put on Venlafaxine to treat the Cataplexy. I knew nothing about it at the time so...

My first cataplexy injury and my friends didn't show me any comfort

I was at an event on the weekend and my cataplexy got me a few times. The last one was particularly bad and I crumpled on the grass right in...

Dexamphetamine UK ??

Hi I'm from Wales UK and diagnosed 6 years ago with narcolepsy with cataplexy and idiopathic hypersomnia after misdiagnoses for 34 years initially I was given dexamphetamine but I was...

Caffeine, Limping, and Narcolepsy Sx

Howdy! First time poster here! I couldn't find a useful answer anywhere through traditional search terms, and as of current I'm just not sure the literature on Narcolepsy addresses my...

Paddle board safety?

I just read a post about someone that drowned because of not using a life vest. I always paddle with someone else and I wear a necklace with a large...

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