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Read conversations, start a discussion, and connect with others about narcolepsy.

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Nightmares

Do you experience nightmares as part of your narcolepsy symptoms and do they affect you even after waking?...

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Fill in the blank: My most frustrating narcolepsy symptom is _____.

From excessive daytime sleepiness to vivid dreams, what is your most frustrating symptom of narcolepsy? Share in the comments below!...

FeaturedActive 3 days ago

Where is the most embarrassing place you have fallen asleep?

Share your answers below!...

Active 8 days ago

Housework

Narcolepsy without Cataplexy is a diagnosis on my medical records along with EDS. I see remarks about people thinking you’re lazy. I...

FeaturedActive 8 days ago

My story: Can anyone relate?

Hello everyone, I am writing this at 4am, as per ususal, I have been awake every hour on the hour since midnight...

FeaturedActive 8 days ago

Narcolepsy and Stress

Do you find that stress increases your daytime sleepiness or other symptoms?...

Scared to try Xyrem

I’ve just been prescribed Xyrem to manage my cataplexy and plan to start it this weekend. I’m scared in case it makes...

switching providers and not having medication for over 30 days

I am switching providers for the treatment of my Narcolepsy and my old provider didn't give me any refills on meds so...

Coffee

When is too much too much ? I don't drink it I eat mine for breakfast and lunch but never before dinner...

Cannot Focus

I cannot focus. I'm exhausted and disgusted with treatment. I've had four sleep studies and the doctor told me I have narcolepsy...

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