Active 7 days agoControlled Medications and Life Expectancy I’m almost 44 and living my entire life with Severe Narcolepsy with Cataplexy has brought me to this question. What as a person with narcolepsy value more? Quality of life...Reactions0reactionsComments4 repliesHealthcare TeamPrescription MedicationInsurance & Disability
Armodafanil worsening EDSHi, I was diagnosed with narcolepsy a couple of months ago and have just been started on Armodafanil (Nuvigil) 150mg. I take it in the morning (about 8am) half an...Reactions0reactionsComments3 repliesPrescription Medication
What medications have you found to work for you?For the first time since I was diagnosed 16 yrs ago, I finally have health insurance. My #1 goal is to find a rx that works for me, or a...Reactions0reactionsComments30 repliesPrescription Medication
Does anyone else feel helpless?For a quick backstory-I've been excessively tired for as long as I can remember. I have spent the last 6 years struggling to stay awake, and trying to have the...Reactions0reactionsComments4 repliesNewly DiagnosedPrescription MedicationCoping
How long did you take to find the right treatment?I know there are many different drugs to deal with narcolepsy. Unfortunately, not all of them are legal in every country (some of them are not allowed in Chile, where...Reactions0reactionsComments15 repliesPrescription MedicationSide EffectsTreatment
What are the worst side effects medication has given you?I've had some really bad experiences with medication and I was wondering whether it's normal to have really bad side effects and what these can be? I know it's different...Reactions0reactionsComments20 repliesPrescription MedicationTreatmentSide Effects
Have you heard about the narcolepsy drug recall?A few days ago, FiercePharma reported that a drug prescribed for narcolepsy and ADHD, Zenzedi, is being recalled because a pharmacist found antihistamine tablets in one of the prescription bottles...Reactions0reactionsComments0 repliesPrescription Medication
switching providers and not having medication for over 30 daysI am switching providers for the treatment of my Narcolepsy and my old provider didn't give me any refills on meds so I haven't had them in over 30 days...Reactions0reactionsComments7 repliesCopingHealthcare TeamPrescription Medication
What is your experience of alcohol?Hey everyone! Recently i've been out drinking with friends while taking modafinil mylan, without realising that there might be serious consequences to this. However, I have done it twice now...Reactions0reactionsComments3 repliesPrescription MedicationTips & AdviceSide Effects
Cataplexy Treatment - Venlafaxine I was diagnosed in 2019 with type 1 Narcolepsy w/ Cataplexy and was immediately put on Venlafaxine to treat the Cataplexy. I knew nothing about it at the time so...Reactions0reactionsComments2 repliesCataplexyPrescription MedicationSide Effects