Active 6 days agoWhat are the worst side effects medication has given you?I've had some really bad experiences with medication and I was wondering whether it's normal to have really bad side effects and what these can be? I know it's different...Reactions 0 reactions Comments18 repliesTreatmentPrescription MedicationSide Effects
Have you heard about the narcolepsy drug recall?A few days ago, FiercePharma reported that a drug prescribed for narcolepsy and ADHD, Zenzedi, is being recalled because a pharmacist found antihistamine tablets in one of the prescription bottles...Reactions 0 reactions Comments0 repliesPrescription Medication
switching providers and not having medication for over 30 daysI am switching providers for the treatment of my Narcolepsy and my old provider didn't give me any refills on meds so I haven't had them in over 30 days...Reactions 0 reactions Comments7 repliesCopingHealthcare TeamPrescription Medication
What is your experience of alcohol?Hey everyone! Recently i've been out drinking with friends while taking modafinil mylan, without realising that there might be serious consequences to this. However, I have done it twice now...Reactions 0 reactions Comments3 repliesSide EffectsTips & AdvicePrescription Medication
Cataplexy Treatment - Venlafaxine I was diagnosed in 2019 with type 1 Narcolepsy w/ Cataplexy and was immediately put on Venlafaxine to treat the Cataplexy. I knew nothing about it at the time so...Reactions 0 reactions Comments2 repliesCataplexyPrescription MedicationSide Effects
Dexamphetamine UK ??Hi I'm from Wales UK and diagnosed 6 years ago with narcolepsy with cataplexy and idiopathic hypersomnia after misdiagnoses for 34 years initially I was given dexamphetamine but I was...Reactions 0 reactions Comments1 repliesCataplexyNewly DiagnosedPrescription Medication
Controlled Medications and Life Expectancy I’m almost 44 and living my entire life with Severe Narcolepsy with Cataplexy has brought me to this question. What as a person with narcolepsy value more? Quality of life...Reactions 0 reactions Comments2 repliesHealthcare TeamPrescription MedicationInsurance & Disability
What medications have you found to work for you?For the first time since I was diagnosed 16 yrs ago, I finally have health insurance. My #1 goal is to find a rx that works for me, or a...Reactions 0 reactions Comments18 repliesPrescription Medication
Stopping MedicationDoes anyone ever feel as though they would prefer to live without medication?...Reactions 0 reactions Comments17 repliesPrescription MedicationCopingSide Effects
Xywav and StimulantsI'm currently on 70 mg Vyvanse every morning with 10 mg Adderall IR as needed for later in the day. I am about to try Xywav for the first time...Reactions 0 reactions Comments2 repliesPrescription MedicationTips & AdviceTreatment