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Read conversations, start a discussion, and connect with others about narcolepsy.

Armodafanil worsening EDS

Hi, I was diagnosed with narcolepsy a couple of months ago and have just been started on Armodafanil (Nuvigil) 150mg. I take it in the morning (about 8am) half an...

What medications have you found to work for you?

For the first time since I was diagnosed 16 yrs ago, I finally have health insurance. My #1 goal is to find a rx that works for me, or a...

Does anyone else feel helpless?

For a quick backstory-I've been excessively tired for as long as I can remember. I have spent the last 6 years struggling to stay awake, and trying to have the...

How long did you take to find the right treatment?

I know there are many different drugs to deal with narcolepsy. Unfortunately, not all of them are legal in every country (some of them are not allowed in Chile, where...

What are the worst side effects medication has given you?

I've had some really bad experiences with medication and I was wondering whether it's normal to have really bad side effects and what these can be? I know it's different...

Have you heard about the narcolepsy drug recall?

A few days ago, FiercePharma reported that a drug prescribed for narcolepsy and ADHD, Zenzedi, is being recalled because a pharmacist found antihistamine tablets in one of the prescription bottles...

switching providers and not having medication for over 30 days

I am switching providers for the treatment of my Narcolepsy and my old provider didn't give me any refills on meds so I haven't had them in over 30 days...

What is your experience of alcohol?

Hey everyone! Recently i've been out drinking with friends while taking modafinil mylan, without realising that there might be serious consequences to this. However, I have done it twice now...

Cataplexy Treatment - Venlafaxine

I was diagnosed in 2019 with type 1 Narcolepsy w/ Cataplexy and was immediately put on Venlafaxine to treat the Cataplexy. I knew nothing about it at the time so...

Dexamphetamine UK ??

Hi I'm from Wales UK and diagnosed 6 years ago with narcolepsy with cataplexy and idiopathic hypersomnia after misdiagnoses for 34 years initially I was given dexamphetamine but I was...

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