Finding a new doctor for better care
Have you ever had to find a new doctor in order to get better care? What was your experience like? Do you have any advice for others?
my daughter has been try to fine the right dr for narcolepsy for years since she been 16 and no dr takes her for narcolepsy because she not fall asleep at there feet they have put her on antidepressants for so long i think they might of fried her brain but cant even get a dr to list to that so if what i am learn dont let them lock you up in a mental hospital to drug you for 2 weeks then send you home say they fixed you they lie so no am try to fine a dr narcolepsy to list and cares so if you any one no of one in the state of Missouri around the Springfield please let me no thank you
How do I find a doctor that knows about narcolepsy. Most of the ones I have treat it like it's not a big deal and make me feel like I'm lazy or dismiss the severity it causes me everyday. I'm so frustrated and can't seem to find a doctor that takes it seriously. Can someone direct me to some resources? I live in the United States the state of Wisconsin.
Hi
, I am so sorry to hear that doctors have been giving you the runaround! That definitely sounds very frustrating. Here is an article that you may find helpful: https://sleep-disorders.net/doctors-specialists. The second paragraph includes a link to find your nearest sleep center. I hope you're able to find the right doctor soon! Best, Allison (Team Member)
I not only have narcolepsy I also have a very rare autoimmune disease. I am 1 of aprox 3000 to 5000 people in the world who have RP. Finding doctors in general is hard, but finding a doctor who will LISTEN to their patients is truly amazing. I was lucky to find a rheumatologist that knows about RP and my sleep doctor is amazing, I even got my regular doctors to listen to me. We know our bodies. We need our doctors to understand this very important fact. You learned from a text book about different diseases...BUT... we are all different! Most people have different side effects or such. We need the doctors to look us in the eye and listen. I am truly thankful for the doctor's I see... I've looked long and hard and it is SOOOOOOO worth it.
Hi
, thanks so much for sharing. I'm so glad that you kept searching and finally found a doctor that listens to you! I agree that it is so important to find a doctor that truly listens. Best, Allison (Team Member)
About 3 years ago I sought out a narcolepsy specialist and found one in Berlin, Germany where I was living at the time. It was definitely helpful to find a doctor that actually knew something about narcolepsy (because most doctors do not unfortunately!) I would advise others to do research and try to find a doctor that has knowledge about narcolepsy. You might have to travel but that might really be worth it! Best Wishes, Lauren (Team Member)
