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Read conversations, start a discussion, and connect with others about narcolepsy.

Narcolepsy/ Doctors/ St. Louis

I am looking for sleep doc suggestions from Narcoleptics that experience chronic Cataplexy in the St. Louis area....

switching providers and not having medication for over 30 days

I am switching providers for the treatment of my Narcolepsy and my old provider didn't give me any refills on meds so I haven't had them in over 30 days...

Females: Hormonal influences on symptoms.

I've experienced difficult menses since my teenage years. One of the more frustrating symptoms was feeling so sleepy for 2-3 days around the start of my period. Since I wasn't...

Controlled Medications and Life Expectancy

I’m almost 44 and living my entire life with Severe Narcolepsy with Cataplexy has brought me to this question. What as a person with narcolepsy value more? Quality of life...

Autoimmune Disorders

Okay, so some of us have heard this and some haven't- that a person can be genetically predispositioned to narcolepsy and can begin experiencing symptoms after an infection or virus...

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Narcolepsy & Healthcare Providers

What could healthcare providers do to help treat narcolepsy better?...

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Finding a new doctor for better care

Have you ever had to find a new doctor in order to get better care? What was your experience like? Do you have any advice for others?...

I've been thinking about publishing this pome(of sorts) that I wrote.

I've written this pome-kinda-thing about my experiences with narcolepsy, and I've had a few writers look at it, with positive responses. But I wanted to get the feedback of others...

Covid 19 Vaccine

Hello- I am 30 years old have narcolepsy with cataplexy (NT1) and I am reaching out to see if anyone with narcolepsy has received the vaccine? If you have, did...

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