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Read conversations, start a discussion, and connect with others about narcolepsy.

Narcolepsy/ Doctors/ St. Louis

I am looking for sleep doc suggestions from Narcoleptics that experience chronic Cataplexy in the St. Louis area....

Controlled Medications and Life Expectancy

I’m almost 44 and living my entire life with Severe Narcolepsy with Cataplexy has brought me to this question. What as a person with narcolepsy value more? Quality of life...

switching providers and not having medication for over 30 days

I am switching providers for the treatment of my Narcolepsy and my old provider didn't give me any refills on meds so I haven't had them in over 30 days...

Females: Hormonal influences on symptoms.

I've experienced difficult menses since my teenage years. One of the more frustrating symptoms was feeling so sleepy for 2-3 days around the start of my period. Since I wasn't...

Autoimmune Disorders

Okay, so some of us have heard this and some haven't- that a person can be genetically predispositioned to narcolepsy and can begin experiencing symptoms after an infection or virus...

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Narcolepsy & Healthcare Providers

What could healthcare providers do to help treat narcolepsy better?...

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Finding a new doctor for better care

Have you ever had to find a new doctor in order to get better care? What was your experience like? Do you have any advice for others?...

I've been thinking about publishing this pome(of sorts) that I wrote.

I've written this pome-kinda-thing about my experiences with narcolepsy, and I've had a few writers look at it, with positive responses. But I wanted to get the feedback of others...

Covid 19 Vaccine

Hello- I am 30 years old have narcolepsy with cataplexy (NT1) and I am reaching out to see if anyone with narcolepsy has received the vaccine? If you have, did...

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