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Diagnosis delays

Were you misdiagnosed as another health condition first? How long did it take you to get diagnosed with narcolepsy?

  1. Depression

    1. Hi . Welcome to the community! I read through some of your other comments and I see that you were finally diagnosed after several years of symptoms through a sleep study. If you don't mind me asking, how did you finally end up with a sleep study? Your situation is all too common, unfortunately. Many people sleep disorders and with autoimmune conditions that cause execessive fatigue are often misdiagnosed with depression. I hope you have a good doctor now. Best wishes. - Lori (Team Member)

  2. 6 months

    1. Welcome to the community, . I am glad you found us. That must have been a frustating six months. Do you might be asking what you were misdiagnosed with and how you finally got an accurate diagnosis? Best wishes. - Lori (Team Member)

  3. Yes I was! I was given medication for depression that made me feel worse. Symptoms started at age 18 and wasn’t diagnosed until 45. My ex husband would make this crazy face at me when he made me sad or angry. It was cataplexy I couldn’t feel.

    1. Hi . Sadly, you are not alone in being diagnosed with depression when fatigue or sleepiness are among your symptoms. That is a common misdiagnosis for people with chronic health conditions. I am glad you finally got the treatment you need and deserve and that you are so willing to share your experiences with the community. Warm wishes. - Lori (Team Member)

  4. Asthma

    1. That must have been very frustrating, . How did your doctors try to make the connection between narcolepsy symptoms and asthma? It seems like quite a stretch. Did it take long to get an accurate diagnosis? Wishing you the best. - Lori (Team Member)

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